tag:blogger.com,1999:blog-29641818507507157952024-03-14T03:47:15.154-04:00Cushie BloggerMaryOhttp://www.blogger.com/profile/10543686626738305049noreply@blogger.comBlogger659125tag:blogger.com,1999:blog-2964181850750715795.post-63767894653490625452018-03-12T09:30:00.000-04:002018-03-12T09:30:15.452-04:00It's Coming...<img height="522" src="https://cushieblog.files.wordpress.com/2014/04/30-posts.jpg" width="675" /><br />
I plan to do the Cushing's Awareness Challenge again. Last year's info is here: <a href="https://cushieblogger.com/2017/03/08/time-to-sign-up-for-the-cushings-awareness-challenge-2017/">https://cushieblogger.com/2017/03/08/time-to-sign-up-for-the-cushings-awareness-challenge-2017/</a><br />
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This original page is getting very slow loading, so I've moved my own posts to this newer blog.<br />
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As always, anyone who wants to join me can share their blog URL with me and I'll add it to the links on the right side, so whenever a new post comes up, it will show up automatically.<br />
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If the blogs are on WordPress, I try to reblog them all to get even more exposure on the blog, on Twitter and on Facebook at <a href="https://www.facebook.com/CushingsInfo/" rel="noopener" target="_blank">Cushings Help Organization, Inc</a>. If you have photos, and you give me<br />
permission, I'll add them to the <a href="https://www.pinterest.com/cushingshelp/">Pinterest page for Cushing's Help</a>.<br />
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The Cushing’s Awareness Challenge is almost upon us again!</div>
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Do you blog? Want to get started?</div>
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Since April 8 is Cushing’s Awareness Day, several people got their heads together to create the Eighth Annual Cushing’s Awareness Blogging Challenge.</div>
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All you have to do is blog about something Cushing’s related for the 30 days of April.</div>
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There will also be a logo for your blog to show you’ve participated.</div>
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Please let me know the URL to your blog in the comments area of this post, on the <a href="https://www.facebook.com/CushingsInfo" rel="noopener" target="_blank">Facebook page</a>, in one of the Cushing's Help Facebook Groups, on the <a href="http://cushings.invisionzone.com/index.php?/topic/54028-cushings-awareness-challenge-2016/" rel="noopener" target="_blank">message boards</a> or an <a href="mailto:cushingshelp@gmail.com" rel="noopener" target="_blank" title="Cushing's Awareness Challenge Blog">email</a> and I will list it on CushieBloggers ( <a href="http://cushie-blogger.blogspot.com/" rel="noopener" target="_blank" title="http://cushie-blogger.blogspot.com/">http://cushie-blogger.blogspot.com/</a> )</div>
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The more people who participate, the more the word will get out about Cushing’s.</div>
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<strong>Suggested topics – or add your own!</strong></div>
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<li>In what ways have Cushing’s made you a better person?</li>
<li>What have you learned about the medical community since you have become sick?</li>
<li>If you had one chance to speak to an endocrinologist association meeting, what would you tell them about Cushing’s patients?</li>
<li>What would you tell the friends and family of another Cushing’s patient in order to garner more emotional support for your friend? challenge with Cushing’s? How have you overcome challenges? Stuff like that.</li>
<li>I have Cushing’s Disease….(personal synopsis)</li>
<li>How I found out I have Cushing’s</li>
<li>What is Cushing’s Disease/Syndrome? (Personal variation, i.e. adrenal or pituitary or ectopic, etc.)</li>
<li>My challenges with Cushing’s</li>
<li>Overcoming challenges with Cushing’s (could include any challenges)</li>
<li>If I could speak to an endocrinologist organization, I would tell them….</li>
<li>What would I tell others trying to be diagnosed?</li>
<li>What would I tell families of those who are sick with Cushing’s?</li>
<li>Treatments I’ve gone through to try to be cured/treatments I may have to go through to be cured.</li>
<li>What will happen if I’m not cured?</li>
<li>I write about my health because…</li>
<li>10 Things I Couldn’t Live Without.</li>
<li>My Dream Day.</li>
<li>What I learned the hard way</li>
<li>Miracle Cure. (Write a news-style article on a miracle cure. What’s the cure? How do you get the cure? Be sure to include a disclaimer)</li>
<li>Give yourself, your condition, or your health focus a mascot. Is it a real person? Fictional? Mythical being? Describe them. Bonus points if you provide a visual!</li>
<li>5 Challenges & 5 Small Victories.</li>
<li>The First Time I…</li>
<li>Make a word cloud or tree with a list of words that come to mind when you think about your blog, health, or interests. Use a thesaurus to make it branch more.</li>
<li>How much money have you spent on Cushing’s, or, How did Cushing’s impact your life financially?</li>
<li>Why do you think Cushing’s may not be as rare as doctors believe?</li>
<li>What is your theory about what causes Cushing’s?</li>
<li>How has Cushing’s altered the trajectory of your life? What would you have done? Who would you have been</li>
<li>What three things has Cushing’s stolen from you? What do you miss the most? What can you do in your Cushing’s life to still achieve any of those goals?</li>
<li>What new goals did Cushing’s bring to you?</li>
<li>How do you cope?</li>
<li>What do you do to improve your quality of life as you fight Cushing’s?</li>
<li>How Cushing’s affects children and their families</li>
<li>Your thoughts…?</li>
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MaryOhttp://www.blogger.com/profile/10543686626738305049noreply@blogger.com1tag:blogger.com,1999:blog-2964181850750715795.post-74937087923787970822017-04-02T17:00:00.001-04:002017-04-02T17:00:11.572-04:00Cushing's Awareness Challenge.<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg1D1OED0TreIz9hk902-TsjinNhCgYrHK3PUUWHCP2Lsvk1mlgI6vXriBRTA7Ly1pyx3i6kC8hmentvlwhuiSm7HpBMO4nJ5_686PeL4KFsPMmpw1vGPMaKioUxjgg_lP9lpwm03hPkQZv/s1600/30-posts.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="247" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg1D1OED0TreIz9hk902-TsjinNhCgYrHK3PUUWHCP2Lsvk1mlgI6vXriBRTA7Ly1pyx3i6kC8hmentvlwhuiSm7HpBMO4nJ5_686PeL4KFsPMmpw1vGPMaKioUxjgg_lP9lpwm03hPkQZv/s320/30-posts.jpg" width="320" /></a></div>
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View all future Cushing's Awareness posts in the newer blog at <a href="https://cushieblogger.com/">https://cushieblogger.com</a>cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0tag:blogger.com,1999:blog-2964181850750715795.post-5278736877674647822017-04-02T17:00:00.000-04:002017-04-02T17:00:04.478-04:00Day 2, Cushing's Awareness Challenge<div style="color: #333333; font-family: Georgia, "Times New Roman", "Bitstream Charter", Times, serif; font-size: 16px;">
<img alt="" class="alignnone" data-mce-src="https://cushieblog.files.wordpress.com/2015/03/me-tired.jpeg" height="500" src="https://cushieblog.files.wordpress.com/2015/03/me-tired.jpeg" style="height: auto; max-width: 100%;" width="841" /></div>
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Sleep. Naps. Fatigue, Exhaustion. I still have them all. I wrote on <a data-mce-href="http://www.cushings-help.com/maryos_story.htm" href="http://www.cushings-help.com/maryos_story.htm" target="_blank" title="MaryO's bio">my bio</a> in 1987 after my pituitary surgery “<em>I am still and always tired and need a nap most days. I do not, however, still need to take whole days off just to sleep.</em>”</div>
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That seems to be changing back, at least on the weekends. A recent weekend, both days, I took 7-hour naps each day and I still woke up tired. That’s awfully close to taking a whole day off to sleep again.</div>
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In 2006, I flew to Chicago, IL for a Cushing’s weekend in Rockford. Someone else drove us to Lake Geneva, Wisconsin for the day. Too much travel, too Cushie, whatever, I was too tired to stay awake. I actually had put my head down on the dining room table and fallen asleep but our hostess suggested the sofa instead. Amazing that I traveled that whole distance - and missed the main event :(</div>
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<a data-mce-href="http://www.cushie.info/blog/wp-content/uploads/2012/04/asleep-in-rockford.jpg" href="http://www.cushie.info/blog/wp-content/uploads/2012/04/asleep-in-rockford.jpg"><img alt="Sleeping in Rockford" class="size-medium wp-image-509 aligncenter" data-mce-src="http://www.cushie.info/blog/wp-content/uploads/2012/04/asleep-in-rockford-300x200.jpg" height="267" src="http://www.cushie.info/blog/wp-content/uploads/2012/04/asleep-in-rockford-300x200.jpg" style="display: block; height: auto; margin-left: auto; margin-right: auto; max-width: 100%;" title="asleep-in-rockford" width="400" /></a></div>
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This sleeping thing really impacts my life. Between piano lessons, I take a nap. I sleep as late as possible in the mornings and afternoons are pretty much taken up by naps. I nod off at night during TV. One time I came home between church services and missed the third service because I fell asleep.</div>
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I only TiVo old tv shows that I can watch and fall asleep to since I already know the ending.</div>
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At the beginning of this year, I was doing <a data-mce-href="http://maryomedical.com/2016/02/28/bees-knees/" href="http://maryomedical.com/2016/02/28/bees-knees/" target="_blank">physical therapy</a> twice a week for 2 hours at a time for a knee injury (read more about that in <a data-mce-href="http://maryomedical.com/2016/02/28/bees-knees/" href="http://maryomedical.com/2016/02/28/bees-knees/" target="_blank">Bees Knees</a>). I come home from that exhausted - and in more pain than I went. I know it worked some and my knee is getting better, but it's such a time and energy sapper. Neither of which I can really spare.</div>
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Maybe now that I’m nearly 11 years out from my kidney cancer (May 9, 2006) I could theoretically go back on Growth Hormone again. My kidney surgeon says he “thinks” it’s ok. I’ve asked my endo about it and he still says no. Considering the GH wasn't supposed to contribute to my cancer, it's interesting that these doctors prefer me not to be on it. I want to feel better and get the benefits of the GH again but I don't want any type of cancer again and I certainly can’t afford to lose another kidney.</div>
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I'll probably just muddle through without it. I always laugh when I see that commercial online for something called Serovital. I saw it in Costco the other day and it mentions pituitary right on the package. I wish I could take the people buying this, sit them down and tell them not to mess with their pituitary glands. But I won't. I'll take a nap instead because I’m feeling so old and weary today, and yesterday.</div>
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And tomorrow…</div>
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<a data-mce-href="http://www.cushie.info/blog/wp-content/uploads/2012/04/MaryOredhatonthetown.gif" href="http://www.cushie.info/blog/wp-content/uploads/2012/04/MaryOredhatonthetown.gif"><img alt="" class="alignleft size-full wp-image-510" data-mce-src="http://www.cushie.info/blog/wp-content/uploads/2012/04/MaryOredhatonthetown.gif" height="179" src="http://www.cushie.info/blog/wp-content/uploads/2012/04/MaryOredhatonthetown.gif" style="float: left; height: auto; margin: 0.5em 1em 0.5em 0px; max-width: 100%;" title="MaryOredhatonthetown" width="195" /></a></div>
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cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0tag:blogger.com,1999:blog-2964181850750715795.post-52020383916160024532017-04-01T09:00:00.000-04:002017-04-01T09:00:10.271-04:00Day 1: Cushing's Awareness Challenge 2017<div style="color: #333333; font-family: Georgia, "Times New Roman", "Bitstream Charter", Times, serif; font-size: 16px;">
April is always Cushing's Awareness Challenge month because <a data-mce-href="http://www.cushie.info/index.php/doctors/95-dr-harvey-williams-cushing-1869-1939" href="http://www.cushie.info/index.php/doctors/95-dr-harvey-williams-cushing-1869-1939" target="_blank">Dr. Harvey Cushing</a> was born on April 8th, 1869.</div>
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<a data-mce-href="https://cushieblog.files.wordpress.com/2014/04/30-posts.jpg" href="https://cushieblog.files.wordpress.com/2014/04/30-posts.jpg"><img alt="30-posts" class="aligncenter size-medium wp-image-1897" data-mce-src="https://cushieblog.files.wordpress.com/2014/04/30-posts.jpg?w=300" height="232" src="https://cushieblog.files.wordpress.com/2014/04/30-posts.jpg?w=300" style="display: block; height: auto; margin-left: auto; margin-right: auto; max-width: 100%;" width="300" /></a></div>
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Thanks to Robin for this wonderful past logo! I've participated in these 30 days for Cushing's Awareness several times so I'm not quite sure what is left to say this year but I always want to get the word out when I can.</div>
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As I see it, there have been some strides the diagnosis or treatment of Cushing's since last year. More drug companies are getting involved, more doctors seem to be willing to test, a bit more awareness, maybe.</div>
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<a data-mce-href="http://www.cushie.info/blog/wp-content/uploads/2012/03/april-fool.jpeg" href="http://www.cushie.info/blog/wp-content/uploads/2012/03/april-fool.jpeg"><img alt="April Fool's Day" class="size-full wp-image-429 alignleft" data-mce-src="http://www.cushie.info/blog/wp-content/uploads/2012/03/april-fool.jpeg" data-mce-style="margin: 10px 20px;" height="200" src="http://www.cushie.info/blog/wp-content/uploads/2012/03/april-fool.jpeg" style="float: left; height: auto; margin: 10px 20px; max-width: 100%;" title="April Fool's Day" width="200" /></a></div>
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How fitting that this challenge should begin on April Fool's Day. So much of Cushing's Syndrome/Disease makes us <g class="gr_ gr_74 gr-alert gr_spell gr_run_anim ContextualSpelling ins-del multiReplace" data-gr-id="74" id="74" style="animation: gr__appear_critical 0.4s ease forwards; background-image: url("data:image/svg+xml; background-position: -1px calc(100% + 3px); background-repeat: no-repeat; background-size: calc(100% + 1px) 100%; border-bottom: 2px solid transparent; http: //www.w3.org/2000/svg' width='100%' height='100%'%3E%3Cline x1='4' y1='100%' x2='100%' y2='100%' transform='translate(-1.5, -2.5)' stroke-width='3' stroke-linecap='round' stroke='%23f3a8a3'/%3E%3C/svg%3E");">Cushies</g> seem like we're the April Fool. Maybe, just maybe, it's the doctors who are the April Fools...</div>
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Doctors tell us Cushing's is too rare - you couldn't possibly have it. <strong><span data-mce-style="color: #00ff00;" style="color: lime;"><em>April Fools!</em></span></strong></div>
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All you have to do is exercise and diet. You'll feel better. <strong><span data-mce-style="color: #ff0000;" style="color: red;"><em>April Fools!</em></span></strong></div>
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Those bruises on your legs? You're just clumsy. <strong><span data-mce-style="color: #800080;" style="color: purple;"><em>April Fools!</em></span></strong></div>
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<g class="gr_ gr_73 gr-alert gr_gramm gr_run_anim Punctuation only-ins replaceWithoutSep" data-gr-id="73" id="73" style="animation: gr__appear_critical 0.4s ease forwards; background-image: url("data:image/svg+xml; background-position: -1px calc(100% + 3px); background-repeat: no-repeat; background-size: calc(100% + 1px) 100%; border-bottom: 2px solid transparent; http: //www.w3.org/2000/svg' width='100%' height='100%'%3E%3Cline x1='4' y1='100%' x2='100%' y2='100%' transform='translate(-1.5, -2.5)' stroke-width='3' stroke-linecap='round' stroke='%23f3a8a3'/%3E%3C/svg%3E");">Sorry</g> you're growing all that hair on your chin. That happens as you age, you know. <strong><span data-mce-style="color: #3366ff;" style="color: #3366ff;"><em>April Fools!</em></span></strong></div>
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Did you say you sleep all day? You're just lazy. If you exercised more, you'd have more energy. <strong><span data-mce-style="color: #ff6600;" style="color: #ff6600;"><em>April Fools!</em></span></strong></div>
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You don't have stretch marks. <strong><span data-mce-style="color: #339966;" style="color: #339966;"><em>April Fools!</em></span></strong></div>
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You have stretch marks but they are the wrong [color/length/direction] <span data-mce-style="color: #cc99ff;" style="color: #cc99ff;"><strong><em>April Fools!</em></strong></span></div>
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<span data-mce-style="color: #cc99ff;" style="color: #cc99ff;"><strong><em><br /></em></strong></span></div>
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The hump on the back of your neck is from your poor posture. <span data-mce-style="color: #0000ff;" style="color: blue;"><strong><em>April Fools!</em></strong></span></div>
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Your MRI didn't show a tumor. You couldn't have Cushing's. <span data-mce-style="color: #ff6600;" style="color: #ff6600;"><strong><em>April Fools!</em></strong></span></div>
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This is all in your mind. Take this prescription for antidepressants and go home. <span data-mce-style="color: #ff00ff;" style="color: magenta;"><strong><em>April Fools!</em></strong></span></div>
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<span data-mce-style="color: #ff00ff;" style="color: magenta;"><strong><em><br /></em></strong></span></div>
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If you have this one surgery, your life will get back to normal within a few months. <span data-mce-style="color: #008000;" style="color: green;"><strong><em>April Fools!</em></strong></span></div>
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<span data-mce-style="color: #008000;" style="color: green;"><strong><em><br /></em></strong></span></div>
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What? You had transsphenoidal surgery for Cushing's? You wasted your time and money. <span data-mce-style="color: #00ff00;" style="color: lime;"><strong><em>April Fools!</em></strong></span></div>
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<span data-mce-style="color: #00ff00;" style="color: lime;"><strong><em><br /></em></strong></span></div>
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I am the doctor. I know everything. Do not try to find out any information online. You could not have Cushing's. It's too rare... <strong><em>April FOOL!</em></strong></div>
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All this reminds me of a wonderful video a message board member posted a while ago:</div>
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<div class="wpview wpview-wrap" data-wpview-text="https%3A%2F%2Fyoutu.be%2FGRaDr3cPAmE" data-wpview-type="embedURL" style="border: 1px solid transparent; clear: both; color: #333333; cursor: default; font-family: Georgia, "Times New Roman", "Bitstream Charter", Times, serif; font-size: 16px; margin-bottom: 16px; position: relative; width: 915.906px;">
<span class="embed-youtube" style="display: block; text-align: center;"><iframe allowfullscreen="true" class="youtube-player" height="467" src="https://www.youtube.com/embed/GRaDr3cPAmE?version=3&rel=1&fs=1&autohide=2&showsearch=0&showinfo=1&iv_load_policy=1&wmode=transparent" style="border-style: initial; border-width: 0px;" type="text/html" width="776"></iframe></span><span class="mce-shim" style="bottom: 0px; left: 0px; position: absolute; right: 0px; top: 0px;"></span><span class="wpview-end"></span></div>
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So now - who is the April Fool? It wasn't me. Don't let it be you, either!</div>
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<img alt="" class="alignnone" data-mce-src="http://www.cushingsonline.com/images/redhat/MaryObunnyredhat.gif" height="231" src="http://www.cushingsonline.com/images/redhat/MaryObunnyredhat.gif" style="height: auto; max-width: 100%;" title="MaryOBunny" width="173" /></div>
cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0tag:blogger.com,1999:blog-2964181850750715795.post-73343377028311614092017-04-01T01:00:00.000-04:002017-04-01T01:00:08.693-04:00Cushing's Awareness Challenge: It's Here!<div style="color: #333333; font-family: Georgia, "Times New Roman", "Bitstream Charter", Times, serif; font-size: 16px;">
Enjoy following the posts of the outstandingly brave <g class="gr_ gr_3 gr-alert gr_spell gr_run_anim ContextualSpelling ins-del multiReplace" data-gr-id="3" id="3" style="animation: gr__appear_critical 0.4s ease forwards; background-image: url("data:image/svg+xml; background-position: -1px calc(100% + 3px); background-repeat: no-repeat; background-size: calc(100% + 1px) 100%; border-bottom: 2px solid transparent; http: //www.w3.org/2000/svg' width='100%' height='100%'%3E%3Cline x1='4' y1='100%' x2='100%' y2='100%' transform='translate(-1.5, -2.5)' stroke-width='3' stroke-linecap='round' stroke='%23f3a8a3'/%3E%3C/svg%3E");">Cushies</g> as they attempt to post a blog post each day for the month of April!</div>
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<img alt="Bloggers-chat" data-mce-src="http://cushieblog.files.wordpress.com/2012/03/ce708-bloggers-chat-scaled800.jpg" height="212" src="https://cushieblog.files.wordpress.com/2012/03/ce708-bloggers-chat-scaled800.jpg" style="height: auto; max-width: 100%;" width="320" /></div>
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Enjoy!</div>
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<img alt="Maryo_colorful_zebra" data-mce-src="http://cushieblog.files.wordpress.com/2012/03/5c0ea-maryo_colorful_zebra-scaled800.gif" height="172" src="https://cushieblog.files.wordpress.com/2012/03/5c0ea-maryo_colorful_zebra-scaled800.gif" style="height: auto; max-width: 100%;" width="199" /></div>
cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0tag:blogger.com,1999:blog-2964181850750715795.post-13087485711197334562017-04-01T00:30:00.000-04:002017-04-01T00:30:04.547-04:00It's Starting!<div style="color: #333333; font-family: Georgia, "Times New Roman", "Bitstream Charter", Times, serif; font-size: 16px;">
<img alt="Ready-set-write" data-mce-src="http://cushieblog.files.wordpress.com/2012/03/7a4ea-ready-set-write-jpeg-scaled800.jpg" height="147" src="http://cushieblog.files.wordpress.com/2012/03/7a4ea-ready-set-write-jpeg-scaled800.jpg" style="height: auto; max-width: 100%;" width="342" /></div>
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Read <a data-mce-href="http://cushie-blogger.blogspot.com/" href="http://cushie-blogger.blogspot.com/" target="_blank" title="http://cushie-blogger.blogspot.com/">all the blog posts here</a>, on the right side.</div>
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It would be great to share some (ALL?) on Twitter, Facebook, wherever to get the word out even further.</div>
cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0tag:blogger.com,1999:blog-2964181850750715795.post-38225755144687813712017-03-31T19:30:00.000-04:002017-03-31T19:30:11.949-04:00Only 1 Day to Go!<div class="p_embed p_image_embed" style="color: #333333; font-family: Georgia, "Times New Roman", "Bitstream Charter", Times, serif; font-size: 16px;">
<img alt="One-day-to-go" data-mce-src="http://cushieblog.files.wordpress.com/2012/03/ec6e1-one-day-to-go-jpeg-scaled800.jpg" height="87" src="http://cushieblog.files.wordpress.com/2012/03/ec6e1-one-day-to-go-jpeg-scaled800.jpg" style="height: auto; max-width: 100%;" width="579" /></div>
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What's this about? <a data-mce-href="http://cushieblog.com/2016/03/19/fifth-annual-cushings-awareness-challenge/" href="http://cushieblog.com/2016/03/19/fifth-annual-cushings-awareness-challenge/">More info here</a><a data-mce-href="http://cushie-blogger.blogspot.com/2012/03/cushing-awareness-challenge.html" href="http://cushie-blogger.blogspot.com/2012/03/cushing-awareness-challenge.html" target="_blank">.</a></div>
cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0tag:blogger.com,1999:blog-2964181850750715795.post-53041063903224490332017-03-30T07:00:00.000-04:002017-03-30T07:00:30.613-04:00Only Two Days to Go!<div style="color: #333333; font-family: Georgia, "Times New Roman", "Bitstream Charter", Times, serif; font-size: 16px;">
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<div class="separator" style="clear: both; text-align: center;">
<a href="http://www.cushings-help.com/images/two-days-to-go.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://www.cushings-help.com/images/two-days-to-go.jpeg" /></a></div>
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More info here: <a href="https://cushieblogger.com/2017/03/08/time-to-sign-up-for-the-cushings-awareness-challenge-2017/" target="_blank">https://cushieblogger.com/2017/03/08/time-to-sign-up-for-the-cushings-awareness-challenge-2017/</a></div>
cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0tag:blogger.com,1999:blog-2964181850750715795.post-6479675906343912152016-04-01T13:30:00.000-04:002016-04-01T13:30:18.428-04:00Cushing's Awareness Challenge, Day 1<div style="color: #333333; font-family: Georgia, 'Times New Roman', 'Bitstream Charter', Times, serif; font-size: 16px; line-height: 24px;">
April is always Cushing's Awareness Challenge month because <a data-mce-href="http://www.cushie.info/index.php/doctors/95-dr-harvey-williams-cushing-1869-1939" href="http://www.cushie.info/index.php/doctors/95-dr-harvey-williams-cushing-1869-1939" target="_blank">Dr. Harvey Cushing</a> was born on April 8th, 1869.</div>
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<a data-mce-href="https://cushieblog.files.wordpress.com/2014/04/30-posts.jpg" href="https://cushieblog.files.wordpress.com/2014/04/30-posts.jpg"><img alt="30-posts" class="aligncenter size-medium wp-image-1897" data-mce-src="https://cushieblog.files.wordpress.com/2014/04/30-posts.jpg?w=300" height="232" src="https://cushieblog.files.wordpress.com/2014/04/30-posts.jpg?w=300" style="display: block; height: auto; margin-left: auto; margin-right: auto; max-width: 100%;" width="300" /></a></div>
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Thanks to Robin for this wonderful past logo! I've participated in these 30 days for Cushing's Awareness several times so I'm not quite sure what is left to say this year but I always want to get the word out when I can.</div>
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As I see it, there have been some strides the diagnosis or treatment of Cushing's since last year. More drug companies are getting involved, more doctors seem to be willing to test, a bit more awareness, maybe.</div>
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<a data-mce-href="http://www.cushie.info/blog/wp-content/uploads/2012/03/april-fool.jpeg" href="http://www.cushie.info/blog/wp-content/uploads/2012/03/april-fool.jpeg"><img alt="April Fool's Day" class="size-full wp-image-429 alignleft" data-mce-src="http://www.cushie.info/blog/wp-content/uploads/2012/03/april-fool.jpeg" data-mce-style="margin: 10px 20px;" height="200" src="http://www.cushie.info/blog/wp-content/uploads/2012/03/april-fool.jpeg" style="float: left; height: auto; margin: 10px 20px; max-width: 100%;" title="April Fool's Day" width="200" /></a></div>
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How fitting that this challenge should begin on April Fool's Day. So much of Cushing's Syndrome/Disease makes us Cushies seem like we're the April Fool. </div>
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Maybe, just maybe, it's the doctors who are the April Fools...</div>
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Doctors tell us Cushing's is too rare - you couldn't possibly have it. <strong><span data-mce-style="color: #00ff00;" style="color: lime;"><em>April Fools!</em></span></strong></div>
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<strong><span data-mce-style="color: #00ff00;" style="color: lime;"><em><br /></em></span></strong></div>
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All you have to do is exercise and diet. You'll feel better. <strong><span data-mce-style="color: #ff0000;" style="color: red;"><em>April Fools!</em></span></strong></div>
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<strong><span data-mce-style="color: #ff0000;" style="color: red;"><em><br /></em></span></strong></div>
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Those bruises on your legs? You're just clumsy. <strong><span data-mce-style="color: #800080;" style="color: purple;"><em>April Fools!</em></span></strong></div>
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<strong><span data-mce-style="color: #800080;" style="color: purple;"><em><br /></em></span></strong></div>
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Sorry you're growing all that hair on your chin. That happens as you age, you know. <strong><span data-mce-style="color: #3366ff;" style="color: #3366ff;"><em>April Fools!</em></span></strong></div>
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Did you say you sleep all day? You're just lazy. If you exercised more, you'd have more energy. <strong><span data-mce-style="color: #ff6600;" style="color: #ff6600;"><em>April Fools!</em></span></strong></div>
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You don't have stretch marks. <strong><span data-mce-style="color: #339966;" style="color: #339966;"><em>April Fools!</em></span></strong></div>
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You have stretch marks but they are the wrong [color/length/direction] <span data-mce-style="color: #cc99ff;" style="color: #cc99ff;"><strong><em>April Fools!</em></strong></span></div>
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<span data-mce-style="color: #cc99ff;" style="color: #cc99ff;"><strong><em><br /></em></strong></span></div>
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The hump on the back of your neck is from your poor posture. <span data-mce-style="color: #0000ff;" style="color: blue;"><strong><em>April Fools!</em></strong></span></div>
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<span data-mce-style="color: #0000ff;" style="color: blue;"><strong><em><br /></em></strong></span></div>
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Your MRI didn't show a tumor. You couldn't have Cushing's. <span data-mce-style="color: #ff6600;" style="color: #ff6600;"><strong><em>April Fools!</em></strong></span></div>
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<span data-mce-style="color: #ff6600;" style="color: #ff6600;"><strong><em><br /></em></strong></span></div>
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This is all in your mind. Take this prescription for antidepressants and go home. <span data-mce-style="color: #ff00ff;" style="color: magenta;"><strong><em>April Fools!</em></strong></span></div>
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If you have this one surgery, your life will get back to normal within a few months. <span data-mce-style="color: #008000;" style="color: green;"><strong><em>April Fools!</em></strong></span></div>
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What? You had transsphenoidal surgery for Cushing's? You wasted your time and money. <span data-mce-style="color: #00ff00;" style="color: lime;"><strong><em>April Fools!</em></strong></span></div>
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I am the doctor. I know everything. Do not try to find out any information online. You could not have Cushing's. It's too rare... <strong><em>April FOOL!</em></strong></div>
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All this reminds me of a wonderful video a message board member posted a while ago:</div>
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https://youtu.be/GRaDr3cPAmE</div>
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So now - who is the April Fool? It wasn't me. Don't let it be you, either!</div>
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cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0tag:blogger.com,1999:blog-2964181850750715795.post-5114005205772927362016-03-18T09:42:00.000-04:002016-03-18T09:42:07.450-04:00Fifth Annual Cushing’s Awareness Challenge<div style="color: #333333; font-family: Georgia, 'Times New Roman', 'Bitstream Charter', Times, serif; font-size: 16px; line-height: 24px;">
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The Cushing’s Awareness Challenge is almost upon us again!</div>
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Do you blog? Want to get started?</div>
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Since April 8 is Cushing’s Awareness Day, several people got their heads together to create the Fifth Annual Cushing’s Awareness Blogging Challenge.</div>
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All you have to do is blog about something Cushing’s related for the 30 days of April.</div>
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There will also be a logo for your blog to show show you’ve participated.</div>
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Please let me know the URL to your blog in the comments area of this post, on the <a data-mce-href="https://www.facebook.com/CushingsInfo" href="https://www.facebook.com/CushingsInfo" target="_blank">Facebook page</a>, in one of the Facebook Groups, on the <a href="http://cushings.invisionzone.com/index.php?/topic/54028-cushings-awareness-challenge-2016/" target="_blank">message boards</a> or an <a data-mce-href="mailto:cushingshelp@gmail.com" href="mailto:cushingshelp@gmail.com" target="_blank" title="Cushing's Awareness Challenge Blog">email</a> and I will list it on CushieBloggers ( <a data-mce-href="http://cushie-blogger.blogspot.com/" href="http://cushie-blogger.blogspot.com/" target="_blank" title="http://cushie-blogger.blogspot.com/">http://cushie-blogger.blogspot.com/</a>)</div>
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The more people who participate, the more the word will get out about Cushing’s.</div>
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<strong>Suggested topics – or add your own!</strong></div>
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<li>In what ways have Cushing’s made you a better person?</li>
<li>What have you learned about the medical community since you have become sick?</li>
<li>If you had one chance to speak to an endocrinologist association meeting, what would you tell them about Cushing’s patients?</li>
<li>What would you tell the friends and family of another Cushing’s patient in order to garner more emotional support for your friend? challenge with Cushing’s? How have you overcome challenges? Stuff like that.</li>
<li>I have Cushing’s Disease….(personal synopsis)</li>
<li>How I found out I have Cushing’s</li>
<li>What is Cushing’s Disease/Syndrome? (Personal variation, i.e. adrenal or pituitary or ectopic, etc.)</li>
<li>My challenges with Cushing’s</li>
<li>Overcoming challenges with Cushing’s (could include any challenges)</li>
<li>If I could speak to an endocrinologist organization, I would tell them….</li>
<li>What would I tell others trying to be diagnosed?</li>
<li>What would I tell families of those who are sick with Cushing’s?</li>
<li>Treatments I’ve gone through to try to be cured/treatments I may have to go through to be cured.</li>
<li>What will happen if I’m not cured?</li>
<li>I write about my health because…</li>
<li>10 Things I Couldn’t Live Without.</li>
<li>My Dream Day.</li>
<li>What I learned the hard way</li>
<li>Miracle Cure. (Write a news-style article on a miracle cure. What’s the cure? How do you get the cure? Be sure to include a disclaimer)</li>
<li>Give yourself, your condition, or your health focus a mascot. Is it a real person? Fictional? Mythical being? Describe them. Bonus points if you provide a visual!</li>
<li>5 Challenges & 5 Small Victories.</li>
<li>The First Time I…</li>
<li>Make a word cloud or tree with a list of words that come to mind when you think about your blog, health, or interests. Use a thesaurus to make it branch more.</li>
<li>How much money have you spent on Cushing’s, or, How did Cushing’s impact your life financially?</li>
<li>Why do you think Cushing’s may not be as rare as doctors believe?</li>
<li>What is your theory about what causes Cushing’s?</li>
<li>How has Cushing’s altered the trajectory of your life? What would you have done? Who would you have been</li>
<li>What three things has Cushing’s stolen from you? What do you miss the most? What can you do in your Cushing’s life to still achieve any of those goals?</li>
<li>What new goals did Cushing’s bring to you?</li>
<li>How do you cope?</li>
<li>What do you do to improve your quality of life as you fight Cushing’s?</li>
<li>How Cushing’s affects children and their families</li>
<li>Your thoughts…?</li>
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cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0tag:blogger.com,1999:blog-2964181850750715795.post-86410689495521208432015-07-21T15:00:00.000-04:002015-07-21T15:00:00.559-04:00Happy birthday, Cushing's Help - 15 years old today!<div style="color: #333333; font-family: Georgia, 'Times New Roman', 'Bitstream Charter', Times, serif; font-size: 16px; line-height: 24px;">
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It's unbelievable but the idea for Cushing's Help and Support arrived 15 years ago last night.</div>
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I was talking with my dear friend <a data-mce-href="http://www.cushings-help.com/intro.htm#Alice" href="http://www.cushings-help.com/intro.htm#Alice">Alice</a>, who ran a wonderful menopause site called Power Surge, wondering why there weren't many support groups online (OR off!) for Cushing's and I wondered if I could start one myself and we decided that I could.</div>
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The first website (<a data-mce-href="http://www.cushings-help.com/intro.htm" href="http://www.cushings-help.com/intro.htm" target="_blank"><strong>http://www.cushings-help.com</strong></a>) first went "live" July 21, 2000 and the <a data-mce-href="http://cushings.invisionzone.com/index.php" href="http://cushings.invisionzone.com/index.php" target="_blank">message boards</a> September 30, 2000. Hopefully, with these sites, I'm going to make some helpful differences in someone else's life!</div>
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The <a data-mce-href="http://cushings.invisionzone.com/index.php" href="http://cushings.invisionzone.com/index.php" target="_blank">message boards</a> are very active and we have weekly online text chats, <a data-mce-href="http://www.blogtalkradio.com/CushingsHelp" href="http://www.blogtalkradio.com/CushingsHelp" target="_blank">weekly live interviews</a>, local meetings, email newsletters, a clothing exchange, a <a data-mce-href="http://cushings.invisionzone.com/index.php?showtopic=14273&st=0" href="http://cushings.invisionzone.com/index.php?showtopic=14273&st=0" target="_blank">Cushing's Awareness Day Forum</a>, podcasts, phone support and much more.</div>
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Whenever one of the members of the boards gets into NIH, I try to go to visit them there. Other board members participate in the <a data-mce-href="http://cushings.invisionzone.com/index.php?showtopic=14721" href="http://cushings.invisionzone.com/index.php?showtopic=14721">"Cushie Helper" program</a> where they support others with one-on-one support, doctor/hospital visits, transportation issues and more.</div>
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cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com1tag:blogger.com,1999:blog-2964181850750715795.post-6549252868420564622015-04-30T21:05:00.001-04:002015-04-30T21:05:59.596-04:00Muskeg Farm : Why I Think I'm in Remission, and why this isn't t...<a href="http://muskegfarm.blogspot.com/2015/04/why-i-think-im-in-remission-and-why.html?spref=bl">Muskeg Farm : Why I Think I'm in Remission, and why this isn't t...</a>: A friend of mine requested I write this post. This is a question everyone asks, and often repeatedly: "Am I in remission?" or &quo...cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0tag:blogger.com,1999:blog-2964181850750715795.post-34267633079465165492015-04-29T21:06:00.001-04:002015-04-29T21:06:46.964-04:00Muskeg Farm : Testing for Cushing's, MN Saliva<a href="http://muskegfarm.blogspot.com/2015/04/testing-for-cushings-mn-saliva.html?spref=bl">Muskeg Farm : Testing for Cushing's, MN Saliva</a>: Oh my goodness! I just realized I forgot salivary cortisol levels in my previous posts about cortisol testing for Cushing's Disease!!! ...cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0tag:blogger.com,1999:blog-2964181850750715795.post-55951307754613112142015-04-28T17:41:00.001-04:002015-04-28T17:41:31.104-04:00Muskeg Farm : Testing for Cushing's, Finale<a href="http://muskegfarm.blogspot.com/2015/04/testing-for-cushings-finale.html?spref=bl">Muskeg Farm : Testing for Cushing's, Finale</a>: DIAGNOSIS! Or so we hope. I know it sounds weird to hope for a diagnosis, tumor, and surgery (often neuro-surgery!), but that's realit...cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0tag:blogger.com,1999:blog-2964181850750715795.post-13862807589495546142015-04-27T17:28:00.001-04:002015-04-27T17:28:15.179-04:00Muskeg Farm : Testing for Cushing's, Imaging<a href="http://muskegfarm.blogspot.com/2015/04/testing-for-cushings-imaging.html?spref=bl">Muskeg Farm : Testing for Cushing's, Imaging</a>: Imaging such as MRI's, CT's, Octreotide Scans, and Gadolinium Scans (newer) will and may be used in the search for the source of y...cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0tag:blogger.com,1999:blog-2964181850750715795.post-45644368990255057702015-04-27T17:26:00.001-04:002015-04-27T17:26:19.496-04:00Less of Me: Doctors in and around Columbus<a href="http://lessofkristin.blogspot.com/2015/04/doctors-in-and-around-columbus.html?spref=bl">Less of Me: Doctors in and around Columbus</a>: As many of you know, I am seeing an endocrinologist who is continuing to test me, but if I feel at any time that I have hit a wall with her,...cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0tag:blogger.com,1999:blog-2964181850750715795.post-70971828595637228922015-04-26T17:41:00.001-04:002015-04-26T17:41:17.862-04:00Muskeg Farm : Testing for Cushing's, IPSS<a href="http://muskegfarm.blogspot.com/2015/04/testing-for-cushings-ipss.html?spref=bl">Muskeg Farm : Testing for Cushing's, IPSS</a>: Inferior Petrosal Sinus Sampling (IPSS) is another interesting test, sometimes ordered by endocrinologists, sometimes ordered by neurosurge...cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0tag:blogger.com,1999:blog-2964181850750715795.post-52304706696765769142015-04-25T15:00:00.001-04:002015-04-25T15:00:14.779-04:00Muskeg Farm : Testing for Cushing's, Dex<a href="http://muskegfarm.blogspot.com/2015/04/testing-for-cushings-dex.html?spref=bl">Muskeg Farm : Testing for Cushing's, Dex</a>: There are actually two types of Dexamethasone Suppression Tests (Dex) used in diagnosing Cushing's, a high dose and a low dose test. Th...cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0tag:blogger.com,1999:blog-2964181850750715795.post-69420510653245174022015-04-25T07:13:00.001-04:002015-04-25T07:13:17.889-04:00Life, Cushing's, Diabetes and Me: Advise from my 12 year old daughter<a href="http://zebralady72.blogspot.com/2015/04/advise-from-my-12-year-old-daughter.html?spref=bl">Life, Cushing's, Diabetes and Me: Advise from my 12 year old daughter</a>: So, I have been having some bad episodes lately. My blood sugars have been going extremely low. This has caused me to pass out a few times. ...cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0tag:blogger.com,1999:blog-2964181850750715795.post-85361981057984127452015-04-24T21:01:00.001-04:002015-04-24T21:01:52.459-04:00Less of Me: ...and I am a material girl<a href="http://lessofkristin.blogspot.com/2015/04/and-i-am-material-girl.html?spref=bl">Less of Me: ...and I am a material girl</a>: There are a number of health reasons why I want to lose about 75-80 lbs. but I'm tired of complaining and having negative vibes hanging ...cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com1tag:blogger.com,1999:blog-2964181850750715795.post-31643252297771342402015-04-24T20:59:00.001-04:002015-04-24T20:59:33.917-04:00Muskeg Farm : Testing for Cushing's, CBG<a href="http://muskegfarm.blogspot.com/2015/04/testing-for-cushings-cbg.html?spref=bl">Muskeg Farm : Testing for Cushing's, CBG</a>: Serum Cortisol Binding Globulin (CBG) is another simple blood draw. This one you don't do often, but just so your endocrinologist can g...cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0tag:blogger.com,1999:blog-2964181850750715795.post-1196842864589925262015-04-24T10:02:00.001-04:002015-04-24T10:02:47.776-04:00Muskeg Farm : Testing for Cushing's, ACTH<a href="http://muskegfarm.blogspot.com/2015/04/testing-for-cushings-acth.html?spref=bl">Muskeg Farm : Testing for Cushing's, ACTH</a>: Serum Adrenal Corticotropin Releasing Hormone (ACTH) is a hormone produced by your pituitary. This hormone signals the adrenals to produce...cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0tag:blogger.com,1999:blog-2964181850750715795.post-25091453386471476462015-04-24T10:00:00.001-04:002015-04-24T10:00:47.177-04:00Less of Me: Cyclical Testing<a href="http://lessofkristin.blogspot.com/2015/04/cyclical-testing.html?spref=bl">Less of Me: Cyclical Testing</a>: Well the response I received from the physicians assistant wasn't quite what I expected. As I told you the other day , my results were l...cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0tag:blogger.com,1999:blog-2964181850750715795.post-19208878932211980832015-04-22T20:59:00.001-04:002015-04-22T20:59:53.642-04:00Less of Me: More testing, more results<a href="http://lessofkristin.blogspot.com/2015/04/more-testing-more-results.html?spref=bl">Less of Me: More testing, more results</a>: Hi All. As I told you last week I had to go back for another cortisol test, another TSH and whatever else the doctor saw fit. So I was not...cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0tag:blogger.com,1999:blog-2964181850750715795.post-68590583194977993922015-04-22T20:57:00.001-04:002015-04-22T20:57:55.470-04:00Muskeg Farm : Testing for Cushing's, MN Serum Cort<a href="http://muskegfarm.blogspot.com/2015/04/testing-for-cushings-mn-serum-cort.html?spref=bl">Muskeg Farm : Testing for Cushing's, MN Serum Cort</a>: Midnight Serum Cortisol is a simple blood test that can be a good diagnostic tool for Cushing's Disease or Syndrome. You see, cortisol ...cushiehttp://www.blogger.com/profile/03457151536101769306noreply@blogger.com0