Thursday, May 26, 2011

Can you halp Wayne feel not so alone with his issues?

Wayne writes:

I am a long time pituitary patient and have had surgery, and radiation (twice), and currently going through chemo (10 year period). Other than the inconveience of having to go to the Dr. and endless treatments, it really has not been physically bad. Now mentally, it has been a struggle. Even though my family has been very supportive, they do not fully understand the day to day struggles I go through and I have had nobody to discuss my problems with. If you started to discuss your problems, everybody would freak out and want to know if I needed to go to the Doctor. No, I just need someone to talk to, thats all.


Respond in the comment area of Cynthia's bio or post here and I'll try to copy and paste from here.

Wednesday, May 25, 2011

Author of NIA talks about Cushing's

twinkie from the message board writes:

Hello all! As some of you know I have written and published a book. I'll be interviewed tomorrow (May 25, 2011) and I asked the interviewer if, along with questions about my book, she would ask one or two questions about Cushing's. TRYING to get the word out! I'm also doing a blog tour and most of the hosts have been kind enough to put my bio up on their sites which includes information about cushing's and this site.

Here is the link if you want to listen in: http://www.blogtalkradio.com/jennifer-walker/2011/05/25/a-cup-of-coffee-and-a-good-book 

The podcast is at 3:30 Pacific time.

You can also find info regarding my tour at authormellareese.blogspot.com You don't have to buy a book but you could always ask a question about cushings in the comment section of the hosting blog.

Thanks Mary O for this fabulous tool you've created here! You saved my life.

Tuesday, May 24, 2011

Other Diseases

Many of the people who post on the message boards suffer from other diseases, as well as Cushing's. These links help to provide some information about these diseases.

~A ~

Acanthosis nigricans
This Topic on the Message Boards.

Acromegaly
This Topic on the Message Boards.

Addison's Disease
This Topic on the Message Boards.

Adrenoleukodystrophy
This Topic on the Message Boards.


~B ~

Barrett's esophagus


~C ~

Carney Complex
This Topic on the Message Boards.

Central Serous Retinopathy
This Topic on the Message Boards.

Congenital Adrenal Hyperplasia (CAH)
This Topic on the Message Boards.

Conn's Syndrome
This Topic on the Message Boards.

Craniopharyngioma
This Topic on the Message Boards.


~D ~

Diabetes insipidus
This Topic on the Message Boards.


~E ~

Ectopic ACTH Syndrome
This Topic on the Message Boards.

Empty Sella
This Topic on the Message Boards.


~F ~

Fibromyalgia
This Topic on the Message Boards.


~G ~

Gigantism
This Topic on the Message Boards.

Growth Hormone (hGH)
This Topic on the Message Boards
.


~H ~

Hirsuitism
This Topic on the Message Boards.

Hyperprolactinemia
This Topic on the Message Boards.

Hyperthyroidism
This Topic on the Message Boards.

Hypoalderostonism
This Topic on the Message Boards.

Hypocalcemia
This Topic on the Message Boards

Hypopituitarism
This Topic on the Message Boards.

Hypothyroidism
This Topic on the Message Boards.


~I ~

Insulin Resistance
This Topic on the Message Boards.


~K ~

Kidney Disease
This Topic on the Message Boards.


~L ~

Lyme Disease
This Topic on the Message Boards.


~M ~

Madelung's Disease
This Topic on the Message Boards.

Menopause
This Topic on the Message Boards.

MEN Type 1
This Topic on the Message Boards.

Myasthenia Gravis
This Topic on the Message Boards.


~N ~

Nelson's Syndrome
This Topic on the Message Boards.


~O ~

Osteopenia
This Topic on the Message Boards.

Osteoporosis
This Topic on the Message Boards.


~P ~

Panhypopituitarism
This Topic on the Message Boards.

PCOS
This Topic on the Message Boards.

Perimenopause
This Topic on the Message Boards.

Pheochromocytoma
This Topic on the Message Boards.

Pituitary dwarfism
This Topic on the Message Boards.

Premature menopause
This Topic on the Message Boards.

Primary pigmented nodular adrenocortical disease (PPNAD)
This topic on the Message Boards

Prolactinoma
This Topic on the Message Boards.

Pseudo Cushing's
This Topic on the Message Boards


~R ~

Rathke’s cleft cyst
This Topic on the Message Boards.

ROHHAD (Rapid-Onset Obesity With Hypothalamic Dysfunction, Hypoventilation, and Autonomic Dysregulation Presenting in Childhood)
This Topic on the Message Boards


~S ~

Sheehan's Syndrome
This Topic on the Message Boards.

Stein-Leventhal Syndrome
This Topic on the Message Boards.


~T ~

Thymoma
This Topic on the Message Boards.

Thyroid Gland Disorders
This Topic on the Message Boards.

Turner’s Syndrome
This Topic on the Message Boards.


~V ~

Von Hippel-Lindau disease
This Topic on the Message Boards.


~Z ~

Zollinger-Ellison Syndrome