Wednesday, December 31, 2008

A Very Happy and (More!) Healthy New Year to All! http://ping.fm/Yj4PS

A Very Happy New Year to All!

My son made this image several years ago, with me holding a soccer ball and him splicing in the actual Times Square New Years Eve countdown ball.

I think he was so clever doing this :)

 

Now let's see if I can stay awake to see the actual event!

 

A happy and (more!) healthy New Year to all!

 

Last Cushing's Alerts for 2008!

Herding Zebras: From a doctor with a chronic disease and Cushing's
By Robin
I don't think at this stage of the game the Cushing's will come back but there are those aftereffects. The panhypopituitarism, low growth hormone, adrenal insufficiency followed by the removal of one of those low-functioning adrenals. ...
Herding Zebras - http://herdingzebras.blogspot.com/

Blonde no more - hello foxy brown » My Battle With Cushing’s Syndrome
30 December 2008 By Kristin 0 In Cushing's Recovery, Photos of My Journey. Well Internet, I’ve done it again. Good-bye blondie, hello foxy brown :> My mantra has always been change is good for the soul. It keeps life interesting. ...
My Battle With Cushing's Syndrome - http://www.mybattlewithcushings.com/

Herding Zebras: Low Vitamin D levels in Type 1 Diabetes
By Robin
Many of us who face Cushing's know what happens to our vitamin D levels. They drop and we experience the problems caused by the low levels. Many of us fight a lowered immune system and low calcium because of it. ...
Herding Zebras - http://herdingzebras.blogspot.com/

Cushing's & Cancer: My Life With Cushing's Disease
By MaryO
Because I had very little support for my symptoms, diagnosis and surgery, I decided to try to make things a little better for other patients and started a support site called Cushing's Help and Support in 2000. ...
Cushing's & Cancer - http://cushingshelp.blogspot.com/

Saturday, December 27, 2008

Alerts

I want an ordinary teenage life
By Rain (;
But I hate my face to the core. It was nice catching up with the boys, yes, boys, because they haven't really grown up. ;\ Time passed very fast and it was soon to go home. Argh. I seriously hate Cushing's. I love my friends. ;) ...
Dreamilicious - http://mysweetconfessions-.blogspot.com/

medical consult center: CUSHING SYNDROME AND CUSHING DISEASE
By medical center
Findling JF, Raff H. Cushing's syndrome: Important issues in diagnosis and management. J Clin Endocrinol Metabol. 2006;10:3746-3753 [C]. 3. DiSomma C, et al. Effectiveness of chronic treatment with alendronate in the osteoporosis of ...
medical consult center - http://medicalconsultcenter.blogspot.com/

Friday, December 26, 2008

December 26 Alerts

Board Message
Cushing's Help and Support Boards · HOME · Adrenal Crisis! Awareness Bands · Bios · Add A Bio · Contents · Cushie T-Shirts and More · Helpful Doctors · Add Your Doctor · Donate · Glossary · Interactive · Newsletters · Search ...
From the Cushing's Help and Support... - http://cushings.invisionzone.com/index.php

Cushing's Family
By judycolby
I'm watching the second episode today that concerns Cushing's. Weird. Justin had been in OK with his girlfriend and her grandparents. He'd said he would be home Christmas day. Last night he told us that they were leaving late last night ...
Cushing's Family - http://judcol.blogspot.com/

NURSING: Cushings
By nursing topics
Cushing's syndrome is a hormonal disorder caused by prolonged exposure to the hormone cortisol. It is called Cushing's disease when it is caused by a pituitary tumor. All other causes of the condition are termed Cushing's syndrome. ...
NURSING - http://nursingtopics.blogspot.com/

Thursday, December 25, 2008

Christmas, 2008 - Cushing's Alerts

from uk - cushings questions (short-don't worry! - Cushing's Help ...
If you really think you have Cushings (of ANY description) why don't you sign up here to get help and info that could help your case with trying to get your Dr to send you for testing - it's free and we're a friendly bunch! ...
From the Cushing's Help and Support... - http://cushings.invisionzone.com/index.php

Cushing's & Cancer: Patient information: Cushing's syndrome ...
After surgery, daily adrenal Hormone Replacement Palm Beach is usually necessary. (See Patient information: Adrenal insufficiency section on treatment of primary adrenal insufficiency). CUSHING'S SYNDROME DURING ...
therejuvenationinstitute - http://therejuvenationinstitute.com/

Cushing's syndrome in pregnancy
INTRODUCTION — The hypercortisolemia in Cushing's syndrome is usually due to a corticotropin (ACTH)-producing pituitary tumor (Cushing's disease), ...

Cushing's Syndrome Caused By Steroid Use - a comprehensive view ...
Find out all about Cushings syndrome, including the most common causes, symptoms and treatments from leading medical experts.

Pituitary - from http://thisistheonlylieiwillevertell.blogspot.com/2008/12/10-unknown-facts-about-santa-claus.html

10 Unknown Facts About Santa Claus:

  1. Santa Claus does not employ children, those are elves. Elves who would look like adults if it weren't for the fact that every elf Santa employs suffered a mysterious injury to their pituitary gland shortly before receiving job offers from Old Saint Nick.

Tuesday, December 23, 2008

Today's Cushing's Alerts - December 23, 2008

Cushing's Family
By judycolby
I have watched my family suffer off and on from depression while battling Cushing's Disease. I have watched the depression lift as if by a miracle after surgery to treat the Cushing's. I am now seeing it return as there is a recurrence ...
Cushing's Family - http://judcol.blogspot.com/

Another Day in the Life of a Train Wreck: I had a phone appt. with ...
By Gracie
I have a wonderful loving husband who just couldn't be replaced. I am also a Cushing's survivor. My blog will journal my recovery from Cushing's, and other daily happenings along the way. With 5 children, there is always something ...
Another Day in the Life of a Train Wreck - http://adayinthelifeofatrainwreck.blogspot.com/

survive the journey: Adrenalectomy improves quality of life for ...
Too often those of us who suffer with Cushing's are told to wait until the ... Waiting for change: Symptom resolution after adrenalectomy for Cushing's ...

Thursday, December 18, 2008

Alerts, December 18, 2008

Cushie Blogger: Cushing's Alerts, December 17, 2008
By MaryO
Cushing's Family. - I came across a blog last night that I had to study this morning and see if I still felt the need to contact her. Today I decided I must contact her and just... 2 days ago. Just Another Day in Paradise . ...
Cushie Blogger - http://cushie-blogger.blogspot.com/

Just Another Day in Paradise: A Christmas Poem
By Christina
I have what is called Cyclic Cushings Disease. This means that I have a small tumor on my pituitary gland that shuts on and off in cycles. Even though its just a itty bitty little thing, that tumor can wreak havoc in the life of a ...
Just Another Day in Paradise - http://christinapay.blogspot.com/

Cushing's Family
By judycolby
At the request of many friends, Cushing's allies, and far away family members, I'm posting some photos of me pregnant with my little peanut pu... 4 months ago. There must be some fun in the middle of chaos - I take photos ...
Cushing's Family - http://judcol.blogspot.com/

Another Day in the Life of a Train Wreck: Almost 17 weeks post op
By Gracie
It can be an ectopic source for Cushing's. It also goes along with MEN1. I'm doing a UFC for that test right now, and I'll do a blood draw for it tomorrow. I don't think that's what is going on. I sure hope not anyway! ...
Another Day in the Life of a Train Wreck - http://adayinthelifeofatrainwreck.blogspot.com/

Wednesday, December 17, 2008

Cushing's Alerts, December 17, 2008

Mary's Mindless Musings: Today I Didn't Cry
By mertoo
1 day ago. Cushing's Family. - I came across a blog last night that I had to study this morning and see if I still felt the need to contact her. Today I decided I must contact her and just... 2 days ago. Just Another Day in Paradise ...
Mary's Mindless Musings - http://marysmindlessmusings.blogspot.com/

Ready Go: Battling Endometriosis: Fumbling
By ReadyGo
I've been doing research of course, and I've found so many Cushing's Disease symptoms that match what I've been going through. But so many of these symptoms are menopausal as well. And so many match up with endometriosis, and PCOS, ...
Ready Go: Battling Endometriosis - http://thebattlecontinues.blogspot.com/

Tuesday, December 16, 2008

Cushing's Alerts - December 16, 2008

Mary's Mindless Musings: Moving On, I Guess
By mertoo
Baby Bump, Nursery, and 32-week Ultrasound visit - Ok. Finally. At the request of many friends, Cushing's allies, and far away family members, I'm posting some photos of me pregnant with my little peanut pu... 4 months ago ...
Mary's Mindless Musings - http://marysmindlessmusings.blogspot.com/

survive the journey: Is Temozolomide a new treatment for ...
Martha's Story: A Must-Read. Cushing's Help and Support. Member. Perspective; Confidentiality; Disclosure; Reliability; Courtesy · medbloggercode.com. Recent Posts. survive the journey. "Cushing's Help" Radio Show ...
survive the journey - http://survivethejourney.blogspot.com/

Board Message
Cushing's Help does not dispense medical advice or endorse any specific doctors or medical institutions. We do not endorse the views and opinions expressed on this forum. Before considering any treatment that affects your health, ...
From the Cushing's Help and Support... - http://cushings.invisionzone.com/index.php

Violin Madness: Help me, Obama!
By stoptheviolins
Two years ago I was diagnosed with Cushing's Disease. I had brain surgery and both adrenal glands removed, and I am still recovering from the effects of the disease. This blog is my attempt to make sense of combining chronic illness ...
Violin Madness - http://violinmadness.blogspot.com/

Monday, December 15, 2008

Several Alerts

12/13/08

Emergency ! Prayers needed now!
.....my son just called me. his wife daye, my daughter in law, Ellas mommy, .......just had a routine laproscopic surgery to remove an ovary. ....somehow they hit an artery......and she has internal bleeding. ...
From the Cushing's Help and Support... - http://cushings.invisionzone.com/index.php

Bill & I got home last night. Now it's back to real life. Early ...
By judycolby(judycolby)
Bill & I got home last night. Now it's back to real life. Early mornings, cold weather, a house that still needs cleaned and work. We were pretty busy today, did no one know it's Friday. Friday is catch up day and a day that for some ...
Cushing's Family - http://judcol.blogspot.com/

12/14/08

Cushings syndrome vs Cushings disease?
I felt having a differant form of Cushings I had less to offer other in ways of encouragment or advice. Never the less I am frustrated and need advice or input from those of you I consider experts on this subject. ...
From the Cushing's Help and Support... - http://cushings.invisionzone.com/index.php

12/15/08

Cross your fingers!
I spent the day out today with friends and really pushed myself -- hard -- stairs, lots of walking on desert terrain, in and out of my car, always being "on" -- I was on fire, I could feel the high! When I got home, my head was pounding ...
From the Cushing's Help and Support... - http://cushings.invisionzone.com/index.php

Vitamin D: "Normal" isn't normal anymore
By survivethejourney@gmail.com (RobinS)
Since many of us with Cushing's Disease and/or other endocrine problems suffer with extremely low Vitamin D ranges, defining a normal range is very important. Vitamin D is not really a vitamin. It is a steriod and exists in two forms, ...
survive the journey - http://survivethejourney.blogspot.com/

I came across a blog last night that I had to study this morning ...
By judycolby(judycolby)
I'd left a comment on her blog but it seemed that she probably wasn't planning on being back to in very soon as she has a lot going on. She has a 13 month old son who looks like he has Cushing's. She had mentioned that.
Cushing's Family - http://judcol.blogspot.com/

I finally completed the book "Eat Pray Love" - by Elizabeth ...
By Rain (;(Rain (;)
Cushing's has been ill-treating me; to the core, I have completely(almost) given up on myself. I fear to love, thinking I don't deserve somebody else's love too and my disease would be dragging him down. ...
Dreamilicious - http://mysweetconfessions-.blogspot.com/

Thursday, December 11, 2008

Cushing's Alerts, December 11, 2008

We've been back at the room for awhile. Bill is sleeping. I think ...
By judycolby(judycolby)
We've been back at the room for awhile. Bill is sleeping. I think having two procedures just two days apart was a little hard on him. He's pretty sore where they inserted the catheter into his thighs. Same place both days. ...
Cushing's Family - http://judcol.blogspot.com/

New Options for Treating Low Libido in Post-Menopausal Women ...
By survivethejourney@gmail.com (RobinS)
... the risks associated with long-term testosterone treatment in women, but the results are promising for women with low sexual desire and function. Brain Blogger's site. For more help with Cushing's, visit http://www.cushings-help.com.
survive the journey - http://survivethejourney.blogspot.com/

Why I've Been Gone...
By Maree(Maree)
He mentioned Cushing's disease, brain tumors and a bunch of other stuff that nearly scared us to death. They even told us to prepare for the possibility of death. It was a nightmare. A lot of Derek's tests were coming back with insanely ...
Work At Home Designs - http://workathomedesigns.blogspot.com/

Even Oprah Needs an Advocate
By Author, Atheist, USN Veteran(Author, Atheist, USN Veteran)
There were stories of a doctor in Los Angeles who could spot someone with Cushing's syndrome from across a crowded room. If you look up an endo's studies, you'll see thryoid, pancreas, adrenal gland, and hormones listed. ...
My Doctor is Killing Me - http://mydoctoriskillingme.blogspot.com/

Wednesday, December 10, 2008

Alerts, December 10, 2008

BLA with reoccurence
Can you have a BLA with recurrence of cortisol over production. My husband recently had a BLA which we were told was successful but he is still having the uncontrollable roid rage. Has anyone ever heard of this or could the possibly be ...
From the Cushing's Help and Support... - http://cushings.invisionzone.com/index.php

I think of Jess everytime I see this on a billboard. This ...
By judycolby(judycolby)
I think of Jess everytime I see this on a billboard. This particular one is at the bus stop. We went to the Farmer's Market today. I find that place fascinating. We didn't stay long at all as I started feeling really sick. ...
Cushing's Family - http://judcol.blogspot.com/

Calling All Bloggers
By ReadyGo(ReadyGo)
I saw references to Cushing's Syndrome, Conn's Disease, hyperplasia, stress, and some form of thyroid disease. I know I have high levels of thyroglobulin antibodies as well (Hashimoto's disease)...I wonder if that's related. ...
Ready Go: Battling Endometriosis - http://thebattlecontinues.blogspot.com/

Results of trip to LA!
One of the things he mentioned in regards to BLA's is that he had a couple of patients that did well after a BLA and he thought that this was probably the way to go after a failed pituitary surgery, but then he had a couple of patients ...
From the Cushing's Help and Support... - http://cushings.invisionzone.com/index.php

Tuesday, December 9, 2008

Boy, we have a lot of Cushing's Alerts!

I just saw that I've done100 posts. Imagine that! It seems that ...
By judycolby(judycolby)
It seems that Bill is just one year behind the kids in his Cushing's journey. It was late June of 07 that I took J&J to see Dr. Friedman http://www.goodhormonehealth.com/ in Los Angeles, halfway across the country. ...
Cushing's Family - http://judcol.blogspot.com/

Back from LA
But I don't even mind or care that it might be in Las Vegas or possibly Baltimore because I now have a Cushing's diagnosis and will be heading to surgery soon! (Wow, it felt great to type that!) I'm not entirely sure what it was that ...
From the Cushing's Help and Support... - http://cushings.invisionzone.com/index.php

Emails that change your Life
By philb(Robin)
In a circumstance such as this, we would consider operating on the pituitary if the hormonal numbers pointed to Cushing's. It's hard to give a specific tumor diagnosis here, but I'd bet that an exploration of the gland would reveal such ...
Herding Zebras - http://herdingzebras.blogspot.com/

Monday, December 8, 2008

December 8, 2008 Alerts

Feeling Ill
They tell me I do not have cushings. They said my cortisol is elevated and the pituitary tumor that I do not have is what is causing my adrenal tumor. However this is not cancer and it is not cushings. So...because I am normal they ...
From the Cushing's Help and Support... - http://cushings.invisionzone.com/index.php

I wrote a long post last night and the internet quit just as I was ...
By judycolby(judycolby)
I wrote a long post last night and the internet quit just as I was posting! I quite often copy into wordpad first for that very reason, but....... So I'll make another attempt. We got to LA late yesterday afternoon. ...
Cushing's Family - http://judcol.blogspot.com/

Childhood Obesity
By Gezzi Geztia Bika(Gezzi Geztia Bika)
Cushing's syndrome (condition in which body contains excess amounts of cortisol) may influence childhood obesity as well. Researchers analyzed two isoforms (proteins that have the same purpose as other proteins, but are programmed by ...
Gessi Familys - http://gessi-familys.blogspot.com/

'The girl who couldn't wake up'-- 5 years of misdiagnosis
By survivethejourney@gmail.com (RobinS)
To read more, click here. A sound bite is included. Jennifer's story will air on Discovery Health's Mystery Diagnosis December 15. Check your local listings for the time. For more help with Cushing's, visit http://www.cushings-help.com.
survive the journey - http://survivethejourney.blogspot.com/

Saturday, December 6, 2008

All us!

Hi, new to the forum
The he tells me that he was testing for cushings, but I didn't have it, my tests were fine. Then the research began for me, I needed more info on this and what it was. I read up on it and boy that list of sympoms was ME ! ...
From the Cushing's Help and Support... - http://cushings.invisionzone.com/index.php

DH's Thoughts
By MaryO(MaryO)
Thursday noon I made my escape from the hospital after a 30 hour marathon effort including a very successful operation. Was helped by lots of prayers, which were very effective I will be working from home on "light duty" probably ...
Cushing's & Cancer - http://cushingshelp.blogspot.com/

We leave for LA early tomorrow morning. Pretty much have ...
By judycolby(judycolby)
We leave for LA early tomorrow morning. Pretty much have everything done except some laundry and then need to pack. But that shouldn't take long. Today is Ashley's and Alicia's birthday. Jess is at supper with Ashley and her folks. ...
Cushing's Family - http://judcol.blogspot.com/

Alerts December 5, 2008
By MaryO(MaryO)
http://cushings.invisionzone.com/index.php. I've been a bundle of nerves for two months trying to get to this ... By judycolby(judycolby) I've been a bundle of nerves for two months trying to get to this point - IPSS & AVS for Bill. ...
Cushie Blogger - http://cushie-blogger.blogspot.com/

The not so fabulous life of Jessica--A new look!
By survivethejourney@gmail.com (RobinS)
Fondly known as Jess or Jessie by those who love her, she is a 15 (soon to be 16) y.0. gal who has already had one surgery to remove a pituitary tumor causing Cushing's. She's still fighting the battle with a recurrence. ...
survive the journey - http://survivethejourney.blogspot.com/

Friday, December 5, 2008

Alerts December 5, 2008

Headache pressure over 1 month
I am still battling a headache, and yes, it has been fairly constant for a month. I've gone to the ED twice during this time when it was unbearable and they just loaded me with pain meds. The MRIs done were supposedly negative ...
From the Cushing's Help and Support... - http://cushings.invisionzone.com/index.php

I've been a bundle of nerves for two months trying to get to this ...
By judycolby(judycolby)
I've been a bundle of nerves for two months trying to get to this point - IPSS & AVS for Bill. Now that the time is almost here I just want it to be over with and back home. I really like home these days, wish I never had to leave it. ...
Cushing's Family - http://judcol.blogspot.com/

Midnight Salivary Cortisol Determination for Assessing the Outcome ...
By MaryO(MaryO)
From http://jcem.endojournals.org/cgi/content/abstract/93/12/4728. Journal of Clinical Endocrinology & Metabolism, doi:10.1210/jc.2008-1171 The Journal of Clinical Endocrinology & Metabolism Vol. 93, No. 12 4728-4734 ...
Cushing's & Cancer - http://cushingshelp.blogspot.com/

Thursday, December 4, 2008

December 4: 2 people, 1 dog

Why is Diagnos Tech not reliable?
I felt like the one & only hard piece of evidence I had that what was going on with me was Cushings is now blown out of the water. My midnight saliva test was super high but all the Dr's keep dismissing it. ...
From the Cushing's Help and Support... - http://cushings.invisionzone.com/index.php

Does Supraglan for Dog Cushing's disease work?
By PetWellBeing(PetWellBeing)
"Before we started to use NHV Supraglan our dog was in bad shape from Cushings. The vet told us that she thought the recommended treatment would not help our dog. He was bloated, hair falling out, joints that were inflamed, ...
: - http://www.petwellbeingblog.com/

Leaving for LA in a couple of days 1. signed medical release for ...
By judycolby(judycolby)
Leaving for LA in a couple of days 1. signed medical release for Ardath and the Purdy's 2. food & snacks to store 3. update paper route list for Virginia 4. call John & give him Virginia's # 5. letter to paper customers 6. call Esoterix ...
Cushing's Family - http://judcol.blogspot.com/

Wednesday, December 3, 2008

December 3, 2008 - Alerts

Help! Scared, Getting Worse Daily
I don’t have Cushings syndrome, but I do have high cortisol, and I think some kind of adrenal disorder, even though many doctors have told me this is not the case. I think my problems stem from high cortisol. ...
From the Cushing's Help and Support... - http://cushings.invisionzone.com/index.php

The difficulties of diagnosing Cushing’s syndrome
By Kristin
A recent article The difficulties of Cushing’s syndrome from Endrocrine Today sheds new light on the number of people suffering from Cushing’s syndrome and how important it is for doctor’s to recognized the symptoms so they can ...
My Battle With Cushing's Syndrome - http://www.mybattlewithcushings.com/

Almost 15 weeks post op update
By Gracie(Gracie)
I hate Cushing's! I had high hopes that I was cured after surgery when I crashed so low. The lack of progress has sunk those hopes. I suppose there is still a slight chance that I do have a cure, but I'm not seeing it right now. ...
Another Day in the Life of a Train Wreck - http://adayinthelifeofatrainwreck.blogspot.com/

Tuesday, December 2, 2008

December 2, 2008 Cushing's Alerts

Had a somewhat odd thing happen today. When I got to work there ...
By judycolby(judycolby)
Had a somewhat odd thing happen today. When I got to work there was an envelope with my name on it in the film dropbox. It was only a few dollars short of what our renters owe monthly. I just figured they were a little short at the ...
Cushing's Family - http://judcol.blogspot.com/

This time last year...
By Kristin(Robin)
It was this time last year that I learned there was a real reason as to why I was so sick - it’s name was Cushing’s. To continue reading this post, please visit my battle with cushing's. Hoofbeats can be zebras.
Herding Zebras - http://herdingzebras.blogspot.com/

Monday, December 1, 2008

December 1, 2008 Cushing's Alerts

Well, it seems we must really be going to LA. I booked the hotel ...
By judycolby(judycolby)
Well, it seems we must really be going to LA. I booked the hotel tonight. Although I feel just a bit odd about it. I usually try to call the hotel direct to make reservations. But during the phone call I found out that even with a UCLA ...
Cushing's Family - http://judcol.blogspot.com/

Osteoporosis
By Gezzi Geztia Bika(Gezzi Geztia Bika)
Steroid-induced osteoporosis (SIOP) arises due to use of glucocorticoids - analogous to Cushing's syndrome and involving mainly the axial skeleton. The synthetic glucocorticoid prescription drug prednisone is a main candidate after ...
Gessi Familys - http://gessi-familys.blogspot.com/