Thursday, July 21, 2011

Cushings Help is 11 Years Old Today!



It's unbelievable but the idea for Cushing's Help and Support arrived 11 years ago tonight. I was talking with my dear friend Alice, who runs a wonderful menopause site called Power Surge, wondering why there weren't many support groups online (OR off!) for Cushing's and I wondered if I could start one myself and we decided that I could.

The first website ( first went "live" July 21, 2000 and the message boards September 30, 2000. Hopefully, with these sites, I'm going to make some helpful differences in someone else's life!

The message boards are very active and we have weekly online text chats, weekly live interviews, local meetings, email newsletters, a clothing exchange, a Cushing's Awareness Day Forum, podcasts, Wiki, phone support and much more.

Whenever one of the members of the boards gets into NIH, I try to go to visit them there. Other board members participate in the "Cushie Helper" program where they support others with one-on-one support, doctor/hospital visits, transportation issues and more.



Thursday, July 7, 2011

Changes to the CushieWiki

We have been getting spammers lately, so changes have had to be made. Anonymous editing is no longer possible. Even signing up for an account on the CushieWiki isn't enough to keep the spam folks at bay, so... if you want to post/edit/create, you'll need to get permission first.

To do so, send a PM to MaryO through the message boards, send a note through the Contact Us page or send a message through FaceBook.

I am sorry for all the annoyances that these spam folks make us go through.