Wednesday, September 16, 2009

RT @rilescat: Please help to build the Health Care Social Media List...put a link on your blog or site: http://ow.ly/pKhm
RT @invisibleillwk: Effectively communicate your illness & #pain #iiwk09 seminar Karen Lee Richards 9/17 530PM http://ow.ly/pcHm
Thurs, 7:30PM EST Cushing's Interview with Jon, pituitary patient. Listen at http://ping.fm/oZmFO Call-in 646-200-0162

Cushing's Help Newsletter, September 16, 2009

Welcome to the latest Cushing's Newsletter!

Cushie Bloggers

Upcoming Interviews

Upcoming Meetings

Upcoming Cushing's Book

Cushing's on Facebook and Twitter

In Memory: Leader of OSU campus ministry dies at 49

Want to Volunteer?

Help Keep The Cushing's Sites Going

Adrenal Glands

Now I know what it feels like to have a gun held to my own head: Ameera MacIntyre's battle with a brain tumour

Addison's CD

Pituitary Awareness Week

Endo News: From isolated growth hormone deficiency to multiple pituitary hormone deficiency: an evolving continuum. A KIMS analysis

Endo News: Disordered and Increased Adrenocorticotropin Secretion with Diminished Adrenocorticotropin Potency in Obese in Premenopausal Women

Endo News: Hypercoagulable State in Cushing’s Syndrome: A Systematic Review

Endo News: Diminished and irregular thyrotropin secretion with delayed acrophase in patients with Cushing’s syndrome

Endo News: Growth hormone replacement in adults: interactions with other pituitary hormone deficiencies and replacement therapies

Endo News: Temozolomide treatment of a pituitary carcinoma and two pituitary macroadenomas resistant to conventional therapy

A young writer with much to say

Endocrine Diseases

New and Updated Helpful Doctors

New and Updated Bios

Tuesday, September 15, 2009

RT @staticnrg: Is Cushing's an invisible illness?? You bet: #iiwk09 #invisibleillness #cushings http://ow.ly/pyY6

National Invisible Chronic Illness Awareness Week

alt

Any Cushies on this Diabetes Board who can help?

Cushing's Disease/Syndrome - Diabetes Forums
By GrnMtGirl

...A short time ago, my sister was doing some online research and came across Cushing's Disease/syndrome which is a disease that happens because the body is making too much cortisol. So, I asked my doctor to check my cortisol levels, which turned out to be high and she sent me to an endo (finally). Today, I got an indication that I may indeed have cushing's (more tests required, of course). If this is the case and I am able to be treated properly there is a chance that the diagnosis of diabetes and/or the diabetes itself will go away because the cortisol won't be controlling my other hormones (insulin)....

Diabetes Forums - http://www.diabetesforums.com/forum/

Monday, September 14, 2009

RT @accarmichael: Awesome Amy Tenderich talk: pts use networks for information, emotional support, advocacy.Also decision support! #txfm09

Sunday, September 13, 2009

Who helped you learn Twitter? Tweet their @username & add #TwitterHelper http://j.mp/15OPg0 - @staticnrg convinced me to try it.
RT staticnrg: Growth Hormone for Survival: It's not always controversial http://ping.fm/ITjla

Saturday, September 12, 2009

RT @MollyDugganLLC: Womens Health: Calendar of Events Date: September 2009 October 2009 Novemb http://bit.ly/6qUA2 Full http://bit.ly/Vvj5h
Did you know you could *listen* to Cushing's posts at http://ping.fm/KgbKT ? Info is read aloud at the click of a button!
Several studies have suggested that the prevalence of Cushing's syndrome is higher than previously thought. http://ow.ly/p6iZ
Cushing's locations page updated, 4 new people added. http://ow.ly/p6cE
4 new and updated Cushing's bios added. dx include 2 pituitary, 1 undiagnosed, 1 steroid-induced http://ow.ly/p69G
Have you found www.cushings-help.com website? Also, message/support boards there? http://ping.fm/3I9Bl

Thursday, September 10, 2009

11 new Cushing's symptoms photos added September 10, 2009 http://ow.ly/oUUc
I've had the petrosal sinus sampling and lots on the message boards have! http://ow.ly/oUTn
Petrosal sinus sampling? Lots have! RT stillenuf: Anyone had the cavernous & p? where they go in both sides of groin.. to determine cushings
Please join us! RT @staticnrg: @cushingsfriend Have you discovered http://ping.fm/aQlsY I hope you'll join us there.