Can you help?

Can anyone help Karen - she posted on Facebook at http://www.facebook.com/permalink.php?story_fbid=10150119434213954&id=146... and wrote: "I am the mother of a 12 yr old recently diagnosed with Cushings, still awaiting cause (ACTH results, imaging) Is there anyone out there that can offer words of wisdom in respect to kids and Cushings? Ive red so much, but would love to hear from the family member or young post-treatment "survivor" Thanks."

Please respond at the link I posted, not to me.  Thanks!