Sunday, August 31, 2008

Google Alerts: Cushing's

Not diagnosed
I'm am researching. I have never been a bundle of energy--lack of energy has always been an issue for me. However, in the last few months, the problems seem more acute. Here are my symptoms: fatigue, muscle and joint pain, ...
From the Cushing's Help and Support... -

Hackers again
By MaryO(MaryO)
Hackers got the site I don't know when for sure so I don't know what database to have restored. At least I was finally able to shut the site down so people don't see the garbage that was put up. ...
Cushing's & Cancer -

Eleven-month-old Colombian baby is the weight of an eight-year-old ...
By Robin(Robin)
Although the Colombian doctors of this 11-month-old baby are exploring hypothyroidism, those of us in the Cushing's community believe it is much, much more. We would not be surprised at a pituitary tumor secreting both ACTH and growth ...
survive the journey -

Friday, August 22, 2008

survive the journey

survive the journey:
"MaryO and Robin discuss doctor blogs and 'Cushie'blogs. Dr. Rob, are your ears burning? ;) I bet Zippy's are! They are red, anyhow...ha!

The Cushing's Help blogtalkradio show has over 6000 listeners on blogtalk alone. The shows are also uploaded to iTunes and have a large following there, too."

Thursday, August 21, 2008

Google Alerts: Cushing's

Google Alerts: Cushing's

By MaryO(MaryO)
I'm finally caught on the Cushing's web site work, the bios, new/updated doctors, podcasts, guest speakers. I just have some bracelets to get sent out and that's it before vacation. Now I have to tackle the packing, paperwork for the ...
Cushing's & Cancer -

Cushing's Disease can stump even the experts....
By Robin(Robin)
Anyhow, it stands to reason one of the topics is "Cushing's". You'd think that would be pretty straight-forward, but did you know there are a lot of famous (and not-so-famous) folks with the last name of Cushing's? ...
survive the journey -

Slight update on daughter
I introduced myself previously - my daughter is 13 and has quickly gone from slim to overweight, with a very large tummy; also acne, dizziness, sleep problems, fatigue, constant thirst. We have a consultation with Dr. ...
From the Cushing's Help and Support... -

I left work early on Monday & Jess and I left for Denver. Her ...
By judycolby(judycolby)
I left work early on Monday & Jess and I left for Denver. Her flight to Seattle left early Tuesday. Her flight was about 8:30 MDT. I came home and got to work about 2:00 CDT. I'm sure she was in Seattle before I was back to town. ...
Cushing's Family -

Friday, August 15, 2008

Spread the Word

I get Google Alerts for "cushing's" as well as several other search terms.

Today's were all our people smile.gif

(Note that the one from the boards cannot be read by anyone who is not logged into the boards)

Google Blogs Alert for: cushing's

Extreme Thirst

Does anyone else suffer from EXTREME thirst? If so how much do you drink per day? What volume did you produce during your UFC's? And do you know why you are so thirsty? I am always thristy!!! All day long, every day, even more so on ...

From the Cushing's Help and Support... -

Pituitary Cancer - What is it - How Do We Treat It | Information ...

By MaryO(MaryO)
Pituitary Cancer - What is it - How Do We Treat It | Information and Resources for Cancer: "Causes Although the exact cause is unknown, a predisposition to Pituitary tumors may be inherited through an autosomal dominant trait. ...
Cushing's & Cancer -

Ouch........that hurts, Dr. Rob....
By Robin(Robin)
Because it made me despair more for those attempting diagnosis and treatment for Cushing's. For anything, really, but this is the cause I have taken on because I have been there. Am there, and will be there. Ask Lisa....she knows: ...
survive the journey -

Tentative Interview with Joselle - Aug 21,2008
She writes in her bio: "I am a 48 year old female recently diagnosed with Cushing's...
Disease caused by a pituitary adenoma. It's taken a few years to finally come to this diagnosis. I had a series of symptoms which were indicative of a
CushingsHelp -

Monday, August 11, 2008

Our own Robin wrote this!

Kevin, M.D. - Medical Weblog: "“Dr. Google, meet Ms. Cyberchondriac. Ms. Cyberchondriac, meet Dr. Google.” Just about every physician reading this is nodding his/her head. They know what I’m talking about.

Just what is a cyberchondriac? My spell-check in Microsoft Word says it is not a word. Funny, though, it doesn’t say that with “Google” as long as I capitalize it. According to the Merriam-Webster dictionary cyberchondria is – wait a minute – it’s not in the dictionary. So why am I reading it so much in the media where it is the technical equivalent of “hypochondria”?"


Thursday, August 7, 2008

Just a Note

These bloggers are all people with Cushing's or family members/friends of Cushing's patients.

I know a lot of animals are afflicted with Cushing's but this isn't the place to learn about dogs, horses and ferrets.