Sunday, March 20, 2011

I Was Diagnosed with a Pituitary Tumor…Now What?

Join Johns Hopkins neurosurgeon and surgical director of the Pituitary Center, Alfredo Quinones-Hinojosa, M.D., for a free online seminar about what people diagnosed with a pituitary brain tumor, their family members and caregivers should know about this condition, the latest treatment options available and what to expect after treatment.

April 5, 2011 - 7 p.m. to 8 p.m. (EST)


US Residents: Register here
International Residents: Register here

Monday, March 14, 2011

Can You Help Jen with Adrenal Cushing's?

Jen posted this on Facebook at

I was just diagnosed with Cushings and still confused and scared about a lot of it...I found out Friday they think it is coming from my Adrenal glands and they are going to do the supression test with the pill 11pm at night...That pill..Then they will have the final answer they need...I had an MRI and the pituitary came back normal and the CT of my kidneys and adrenal one Adrenal on the right side was larger than the other...

SO 90 percent sure the Adrenal glands will be removed. Can anyone who had their adrenals removed tell me what to expect, down time and how long were they in the hospital after surgery...I have 3 active boys and I need to mentally prepare myself for what is coming next...Scared that sort of thing...My BP has gone to malignant BP and they say that the BP will get back to normal or close to it in due time after the surgery...whatever that means...With the high BP I have been having neurological things go on like numbness and headaches and you name it...Sorry this is long but it has been an ordeal...You guys can calll me Jen BTW:)

Thursday, March 10, 2011

Can you help?

Can anyone help Karen - she posted on Facebook at and wrote: "I am the mother of a 12 yr old recently diagnosed with Cushings, still awaiting cause (ACTH results, imaging) Is there anyone out there that can offer words of wisdom in respect to kids and Cushings? Ive red so much, but would love to hear from the family member or young post-treatment "survivor" Thanks."

Please respond at the link I posted, not to me.  Thanks!

Wednesday, March 9, 2011

Cushing's Syndrome and Disease: A Disorder That Often Goes Undiagnosed

Obesity, excess neck fat and the ability to easily bruise are just a few signs of this commonly overlooked condition. Often it is caused by a tumor in the adrenal gland, which may be cancerous. Nancy D. Perrier, M.D., F.A.C.S., chief of the Section of Surgical Endocrinology at MD Anderson Cancer Center, discusses this disorder and the difference between the syndrome and disease.

Guest(s): Nancy D. Perrier, M.D., F.A.C.S.