Wednesday, January 25, 2012

Have You Been Diagnosed With Cushing's? Earn $125 or $250

We invite you to help us create better information, tools, and resources

for people with Cushing’s Syndrome 

  • How: Share your opinions and give input in a one-on-one confidential interview. Your opinions will remain confidential. The overall results will help others with Cushing’s Syndrome.  

  • When: Market research interviews can be conducted by phone or in-person, in a location near you. The interview will last approximately 45 minutes. 

  • If you are interested in a phone interview or in-person interview, please contact Clair Carmichael Johnstone (see details below). More information (including cities and locations for in-person interviews) will be provided on the phone.  

  • Am I Eligible? If you’ve been diagnosed with Cushing’s Syndrome and still experience symptoms of Cushing’s you are eligible to participate. Cushing’s Syndrome includes: Cushing’s Disease, ectopic Cushing’s and adrenal Cushing’s. Patients should have been diagnosed within the last 10 years.  

  • At this time, patients who are in remission, were diagnosed more than 10 years ago, or have had a bilateral adrenalectomy are not eligible for research. 

  • Details: Participants eligible for market research will be asked to participate in the 45-minute interview. Patients participate also receive an honorarium (payment) for your time. Those who participate in an in-person interview will be compensated $250 and those who choose a phone interview will receive $125 for their time. 

  • Why?  Corcept Therapeutics is interested in hearing from people who suffer from Cushing’s Syndrome in order to improve treatment and information available. This can lead to improved education and resources for those with Cushing’s and physicians treating Cushing’s.


How do I find out more?

If you have questions or would like to participate, please contact Clair Carmichael Johnstone at: 

Toll-free number: (800) 856-6706, or



Please provide your name, phone number, and the best times to reach you so we can follow up promptly. 

Monday, January 2, 2012

We have been Nominated for a Health Activist Hero 2011!

We were nominated for a wego Health Activist Hero 2011 award!


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Our Health Activist Awards program will award Health Activists for their outstanding achievements in online health leadership and advocacy in 2011.

Health Activist Hero 2011

 Who has changed your life? There are some people who can truly change your entire outlook on life just with their story, their dedication, their words, and their encouragement. Who is your Health Activist Hero? Who would you like to thank and why? For so many Health Activists, impacting the life of just one reader is worth more than 1,000s of page views. This award is an emotional one but will yield some incredible stories. 

Do you know a Health Activist who has changed your life, your condition, or your Health Activism?  Thank them by recognizing them as a Health Activist Hero!

Vote for us here:

Our nominating post:


Award: Health Activist Hero (  


Reason: If it wasn't for MaryO's hard work in creating an online community I don't know if I'd have made it through all these years. She's a behind the scenes kind of person, she doesn't ask for much and often winds up on the periphery but despite her own health challenges she gives and gives and gives and has helped thousands of people.



Sunday, January 1, 2012

Criteria for Online Support Group

I am a nurse practitioner student and I need your help. I am trying to develop a set of criteria to give to my patients to help them find an on-line support group. I want to find out what on-line support group users like or dislike about on-line support and what you look for in a good group.

My research was prompted by an amazing patient who has just been diagnosed with cushings after several years of profound symptoms. I wanted to refer this patient but was unsure of what to tell her to look for.

My research is due in March of this year and any help in responses would be greatly appreciated.

Thank you. Carol


Note:  please add comments to this question below.