Tuesday, March 31, 2009

Cushing's Alerts March 31, 2009

Ready Go: Battling Endometriosis: Dr. Friedman...
By ReadyGo
I'm heading to L.A. on Wednesday morning to see Dr. Friedman- the periodic Cushing's specialist. Everyday I change my mind about my own diagnosis. Depending on the moment, I'm sure that I have Cushing's, or that my endometriosis is the ...
Ready Go: Battling Endometriosis - http://thebattlecontinues.blogspot.com/


survive the journey: Cushing's Syndrome in Women With Polycystic ...
By survivethejourney@gmail.com (RobinS)
Cushing's Syndrome in Women With Polycystic Ovaries and Hyperandrogenism continues the theme of how to distinguish between PCOS and Cushing's. Above is a picture of a woman who was diagnosed as having PCOS. ...
survive the journey - http://survivethejourney.blogspot.com/

Sunday, March 29, 2009

Cushing's Alerts

Cushing's Family
By judycolby
Rare Care for a Rare Disease - Ellen is a member of the Cushing's Help Message Boards From http://www.mywheaton.org/locations/elmbrook_memorial/EM_HG_surg_Ptstory1.asp Cushing’s Diseas... 14 hours ago. Living by the Book ...
Cushing's Family - http://judcol.blogspot.com/


Miss Diagnosis: Fast Forward? A New Surgeon
By Hi, I'm Rene
Hi, I'm Rene: I am a stay at home mom with two teenagers;I have a 17 year old son and a 15 year old daughter who is battling Cushing's disease. I've been happily married for 21 years and live in California. View my complete profile ...
Miss Diagnosis - http://missdiagnosis-rene.blogspot.com/

Great Information from Robin and Dr Ted Friedman

Thanks, Robin!  She posted this in her blog survive the journey

survive the journey: Diagnosing and Treating Cushing's ...
By survivethejourney@gmail.com (RobinS)

Diagnosing and Treating Cushing's: Presentations by Dr. Theodore C. (Ted) Friedman. Dr. Friedman's original PowerPoints may be found at his website. These are very informative and easy to follow. ...

survive the journey - http://survivethejourney.blogspot.com/

Friday, March 27, 2009

Rare Care for a Rare Disease

Ellen is a member of the Cushing's Help Message Boards

From http://www.mywheaton.org/locations/elmbrook_memorial/EM_HG_surg_Ptstory1.asp

Cushing’s Disease is a rare condition where a non-cancerous tumor in the pituitary gland causes the production of excess cortisol, a stress hormone. This can lead to diabetes, obesity, high blood pressure, heart disease, suppression of the immune system, and much more.

“It basically ages you prematurely, affecting every system in the body” says Ellen, who, until recently, was suffering with Cushing’s Disease.

A resident of Colorado, Ellen went to her doctor complaining of many new symptoms, including fatigue and headaches. He suspected she might have Cushing’s Disease. He referred her to an endocrinologist in California for further testing.

The endocrinologist determined that Ellen’s condition would require surgery, removal of the tumor in her pituitary gland. Following the surgery, however, Ellen’s Cushing’s Disease persisted. Two options remained: another pituitary surgery, or a more definitive treatment, removal of her adrenal glands, the glands that sit atop each kidney and, in Ellen’s case, were producing the excess cortisol that was making her sick.

Ellen chose to remove her adrenals. Her endocrinologist immediately recommended the best doctor he knew of for the procedure: Dr. Manfred Chiang at Wheaton Franciscan Healthcare – Elmbrook Memorial.

Somewhat surprised that she was being referred to a hospital she’d never heard of in a small Wisconsin town, Ellen did some research. She discovered an online support group at www.cushings-help.com . She also learned that her endocrinologist was not steering her wrong.

“Dr. Chiang has a following,” explains Ellen. “Folks from all around the country had gone to him for their surgeries.” She decided to do the same.

When she met Dr. Chiang, she knew she had made the right choice. “He was wonderful; incredibly skilled and intelligent,” says Ellen. “He actively listened to me, followed through, and was exceptionally kind and compassionate.”

Her surgery went very well. Dr. Chiang performed the procedure laproscopically meaning it was minimally invasive. “There are very few hospitals in the country who regularly perform this unusual surgery,” says Ellen. “But fortunately, Dr. Chiang is considered one of the best bilateral adrenalectomy specialists in the nation.”

“I was up and about that same day,” says Ellen. “And I was finally free of Cushing’s!”

An excellent staff at Elmbrook Memorial enhanced Ellen’s experience.

“The entire experience was the most amazing I’ve ever had at a hospital,” Ellen says. “It was immaculately clean. I loved the warm colors, the layout, and the view. And the nurses were excellent; very intelligent, very willing and able to help. If I had an issue they figured out how to fix it and they fixed it. Every one of them introduced themselves to me, wrote their name on the board when they came into my room, and listened to me. That can be such a rare thing in a busy hospital. They really worked to make my hospital experience a good one.”

Ellen says at www.cushings-help.com she’s not the only one who feels this way. “I’ve never heard a negative word about Elmbrook Memorial.”

Cushing's Alerts March 27, 2009

Cushing's Family
By judycolby
We went over the kids' Cushing's history and then he told me that tomorrow someone from his office would call and we could work out the details of surgery. I alternate between calm and scared. I just talked with the gal that does our ...
Cushing's Family - http://judcol.blogspot.com/


Has anyone experienced complications from Cushing's Disease ...
Can it cause kidney failure? How do you treat Cushing's with Diabetes ? Do you have to be cautious with medications? Can medications cause adverse ...
Diabetes - http://forum.cbtopsites.com/diabetes-f36.html

Friday, March 20, 2009

Cushing's Alerts March 19, 2009

momentsofdays: Alternative much. :P
By momentsofdays
Blood tests are also useful to detect extreme excessive levels of adrenal hormones in a condition known as Cushing's disease. Adrenal hormones are low in the case of Adrenal fatigue, but still within the "normal" range and not low ...
momentsofdays - http://momentsofdays.livejournal.com/


Discovered: The 'fat controller' in the body that is the key to ...
By Maylar
As for the Cushing's, my case is currently considered untreatable because of it's peculiar nature (cyclical, as well as the extremely rare familial form of the problem). I am not looking forward to treatment under the coming universal ...
Conservative Republican Discussion... - http://www.republicanoperative.com/forums/


Just Another Day in Paradise: California and Answers
By Christina
Firstly, I do have Cushing's Disease, caused by a small tumor on my pituitary gland. Why is this such a big deal when I've thought all along that I've had Cushings? Because finally a physician has validated my opinion, and not only that ...
Just Another Day in Paradise - http://christinapay.blogspot.com/

Sunday, March 15, 2009

Cushing's Alerts, March 15, 2009

Dianna , Her strength for my journey, we finish together ...
By riverflowsdown
He diagnosed Dianna with Cushings Syndrome. Cushings is basically a small tumor on the pituitary glad. Dianna has now had 3 brain surgeries and a gamma knife surgery. She has had Her pituitary gland removed and now takes more medicine ...
Mission updates - http://riverflowsdown.wordpress.com/


survive the journey: The Blunting of Occam's Blade: Why diagnosis ...
By survivethejourney@gmail.com (RobinS)
For example, patients with Cushing's syndrome may manifest diverse symptoms including weight gain, trouble sleeping, severe fatigue, decreased libido, high blood pressure, and diabetes, but most patients with Cushing's syndrome do not ...
survive the journey - http://survivethejourney.blogspot.com/

Saturday, March 14, 2009

Cushing's Alerts, March 14, 2009

Test-Impared Glucose tolerance for PCOS.? | Hair Loss
By admin
High cortisol levels can indicate Cushing's syndrome–another endocrine system disorder that shares many symptoms with PCOS. Sometimes Cushing's gets misdiagnosed as PCOS because PCOS is much more common. Filled under: hair loss in women ...
Hair Loss - http://www.hairlossrefuse.com/


DISEASE 4 INFO: Management of Small-Cell Lung Cancer: Incremental ...
Hyponatremia, due to ectopic production of antidiuretic hormone or atrial natriuretic peptide, is observed in up to 15% of patients with SCLC, while Cushing's syndrome is seen in 2% to 5% of SCLC patients. ...
DISEASE 4 INFO - http://disease4info.blogspot.com/

Friday, March 13, 2009

Cushing's Alerts from March 9, 2009

Ready Go: Battling Endometriosis: I'm back!!!
By ReadyGo
He said that it looks like everything is normal, I don't have Cushing's, that "little something" I have in my brain is no big deal, a lot of people have those, and that he thinks the Lupron is what's causing all of my symptoms. ...
Ready Go: Battling Endometriosis - http://thebattlecontinues.blogspot.com/

Cushing's Family
By judycolby
If by chance their livers were already screwed up by Cushing's, it probably wouldn't be a bad thing to not take it. I would suppose I'll get the results this week. Posted by judycolby at 7:03 PM ...
Cushing's Family - http://judcol.blogspot.com/

Friday, March 6, 2009

Cushing's Alerts March 6, 2009

Cushing's Family
By judycolby
At the request of many friends, Cushing's allies, and far away family members, I'm posting some photos of me pregnant with my little peanut pu... 7 months ago. There must be some fun in the middle of chaos - I take photos ...
Cushing's Family - http://judcol.blogspot.com/


Cushing's Disease: Tumors that secrete adrenocorticotrophic hormone (ACTH) stimulate the body's adrenal glands (situated just above the kidneys) to make excessive amounts of cortisol, a steroid that the body normally makes and needs for ...
DISEASE 4 INFO - http://disease4info.blogspot.com/


house_1_god_0: House Medical Dictionary
By Gregory House, MD
There are many side effects including high blood glucose, fatigue, infections, joint pain and even, in the long term, Cushing's syndrome. ▪ Psittacosis: A potentially fatal bacterial disease that is often found in the feces of birds. ...
THERE'S NO "I" IN TEAM - http://house-1-god-0.livejournal.com/


Miss Diagnosis: The Referal Process
By Hi, I'm Rene
Hi, I'm Rene: I am a stay at home mom with two teenagers;I have a 17 year old son and a 15 year old daughter who is battling Cushing's disease. I've been happily married for 21 years and live in California. View my complete profile ...
Miss Diagnosis - http://missdiagnosis-rene.blogspot.com/

Tuesday, March 3, 2009

Cushing's Alerts March 3, 2009

Lori's Stuff: Another Monday
By Lori
My guess is that my left adrenal gland is working overtime, causing Cushing's Syndrome. I think I'd have to have surgery to remove the gland, but then I should be ok. That's the assumption I'm working under --- let's just hope the test ...
Lori's Stuff - http://jaxkid.blogspot.com/


Cushing’s Disease | Skin Care Essentials
By admin
Hi :) My second post in health in one day!! :lol: Ive been diagnosed with Cushing's disease, caused by tumours on the pituitary gland, its a...
Skin Care Essentials - http://skincare.mygratuito.com/


Addison's Help: Addison's Alerts 3/2/2009
By MaryO
Addison's / Adrenal Alerts 2/15/2009 · Addison's Alert · Adrenal Cushing's Video · ► January (20). Addison's Alerts · Addison's Alerts · Adrenal Alerts - 1/20/09 · Adrenal Alerts - 1/19/09 · Google Alerts · Adrenal Alerts ...
Addison's Help - http://addisonshelp.blogspot.com/

Monday, March 2, 2009

Cushing's Alerts 3/2/2009

O'Connor O'Riginals: What a Great Time in NYC!
By MaryO
Needless to say, after my morning church handbellringing, I slept most of the rest of the day! See and download the full gallery on posterous · Posted via email from MaryO's Stuff. This blog post is posted from Cushing's & Cancer at ...
O'Connor O'Riginals - http://oconnororiginals.blogspot.com/


Terry's weight loss journey: What is in a number?
By Daiquiri princess
In 1993, after 11 months of tests and feeling miserable, I was diagnosed with bi-lateral functioning adrenal adnomias, which causes Cushing's disease. The doctors explained that I probably had about 18- 22 months to live. ...
Terry's weight loss journey - http://terrysweightlossjourney.blogspot.com/