Cushing’s Alerts ~ January 25, 2010

Cushie Blogger: Cushing's Blog Alerts ~ January 11, 2010
A radio button – you can play the Cushing's podcasts right from this toolbar. You can also add stations that you'd like to listen to. ...

Miss Diagnosis: Progesterone
By Hi, I'm Rene
The surgical removal of the pituitary adenoma is performed by a technique called a transsphenoidal operation. The word 'transsphenoidal' describes the path the surgeon follows to reach the pituitary gland. The word comes from 'trans', ...
Miss Diagnosis - http://missdiagnosis-rene.blogspot.com/

Acne Vulgaris – Definition, Causes, Symptoms and Treatment ...
By admin
True acne vulgaris in adults may be a feature of an underlying condition such as pregnancy and disorders such as polycystic ovary syndrome or the rare Cushing's syndrome. Acne treatment depends on whether you have a mild, ...
Healthy Tips - http://www.chacoastronomy.com/

High Glucose Levels and Normal Blood Sugar Levels | Free Diabetic ...
By admin
High glucose levels in the morning leads to many chronic complications. These are the possible factors that contribute towards increased amount of sugar in the bloodstream: * Chronic pancreatitis * Cushing's syndrome * Cystic fibrosis ...
Free Diabetic Recipes - http://www.aapscot.org/

Cushing’s Alerts ~ January 24, 2010

survive the journey: My picks for the top 10 e-Patients you should ...
@cushings: If you want to keep up with what is happening in the "Cushing's Help" world, and with everything anyone is doing related to Cushing's, ...

Register your cushings-help support group nick name here! | Facebook
3 small stripes on my belly at 39 in 2005, Googled "abdominal stretch marks", found Cushing's-Help.com and moved on to diagnosis in 2006 and pituitary ...

 

Questions about cortisol stress - Ask.com
Check out www.cushings-help.com There are people there who are like you and some have had kids and some who cannot. The high cortisol interferes with other ...

Cushing’s Blog Alerts ~ January 23, 2010

Daily Doses of WTF » Blog Archive » I have no idea where this is ...
By admin
It was not even close to being a fit, and Lupus attacking the brain is even rarer than Doctors claim Cushing's is… and it was never a full fit. There were things that I just didn't have, but because there was not really any other ...
Daily Doses of WTF - http://dailydosesofwtf.com/

Surf the world & spread the word: Risk factors that can lead to ...
By surfblog
... or medical conditions: Obesity is associated with certain medical conditions like hypothyroidism (low thyroid function), Cushing's syndrome (excess hormone production by adrenal gland), arthritis (due to decrease physical activity). ...
Surf the world & spread the word - http://surfworldblog.blogspot.com/

Rheumatoid Disease - Arthritis Signs and Symptoms Cushing's ...
Cushing's syndrome is a rare endocrine disorder caused by high levels of cortisol in the blood.
Rheumatoid Disease - Arthritis... - http://rheumatoiddisease.com/

symptoms of cushing's syndrome - Bloglines
Defines Cushing's syndrome, a disorder resulting from prolonged exposure of the body's tissues to high levels of the hormone cortisol. ...

Cushing’s Blog Alerts ~ January 20, 2010

Cushing's & Cancer: Rare Disease Day Feb 28, 2010
By MaryO
Because I had very little support for my symptoms, diagnosis and surgery, I decided to try to make things a little better for other patients and started a support site called Cushing's Help and Support in 2000. ...
Cushing's & Cancer - http://cushingshelp.blogspot.com/

1974 to Today: This is hard.
By Experience
So, with Cushing's syndrome or disease, a patient can eat 500 to 5000 calories in a day and it doesn't effect their size or weight. The feeling of being hungry all the time is part of Cushing's. What happens now that I am supposedly ...
1974 to Today - http://1974totoday.blogspot.com/

Cushing’s Blog Alert ~ January 14, 2010

Depression and Cushings Disease
That day, I was diagnosed with Cushings disease. I realized all the symptoms added up to one rare disease. I was actually happy, just knowing what was wrong ...

Cushing’s Blog Alert ~ January 12, 2010

You'd Rather Be Dead ... - Smart Car of America Forums
By jediknight36
The article doesn't do cushing's justice. Its horriable! Not the worst on the list, but the most common. Addison's is the cure.

I ran across this article today and with all the fear about swine flu still running around I thought I would post something that makes the swine flu look cuddly. Enjoy!

You'd Rather Be Dead ...... than have any one of these 10 horrifying and peculiar afflictions

Smart Car of America Forums - http://www.smartcarofamerica.com/forums/

Cushing's Blog Alerts ~ January 11, 2010

Addison's Help: Trying something new…again
By MaryO
A radio button – you can play the Cushing's podcasts right from this toolbar. You can also add stations that you'd like to listen to. You can also add other modules like games, weather, email, hundreds of different things. ...
Addison's Help - http://addisonshelp.blogspot.com/

 

Daily Improvements: Branching out...
By Catherine Hughes
And I'm doing these things whilst dealing with chronic post-surgical pain and a variety of endocrine problems, whilst also undergoing testing to determine whether I might have cyclical Cushing's Syndrome. But I do love a challenge! ...
Daily Improvements - http://dailyimprovements.blogspot.com/

Cushie Blog Alert ~ January 10, 2010

Cushing's Family
By judycolby
Life with two kids and a husband who all have Cushing's. Jess, Judy, Justin. "you did what you knew to do at the time. when you knew better, you did better." Maya Angelou. Justin & Jess about 6 months post BLA ...
Cushing's Family - http://judcol.blogspot.com/

Cushing's Blog Alerts ~ 1/9/10

Cushing's Moxie: Fighting The Worst Disease You've Never Heard Of ...
By Moxie Melissa
I only share my experience in the diagnosis and treatment of my Cushing's disease. Due to the 'rarity' of this disease, I quickly learned the body, the hormones, the testing, and jargon. I encourage you to do the same. ...
Cushing's Moxie: Fighting The... - http://cushingsmoxie.blogspot.com/

 

this & that - Cushing's recovery update month 24 — My Battle With ...
It's hard to believe it's been a whopping 24 months since I went into recovery from Cushing's syndrome. For those of you who are also on the path to ...

Cushing’s Blog Alerts ~ Jan 1, 2010

1974 to Today: Cushing's, Cancer, Graduation, and New York
By Experience
I'm on my way with ridding my body of Cushing's syndrome. Soon, I'll start the process to alleviate cancer, too. The path to graduation in May is all set, but I'm unsure of my ability to conquer 10 credit hours, work full time, ...
1974 to Today - http://1974totoday.blogspot.com/

 

Miss Diagnosis: Ritalin
By Hi, I'm Rene
Hi, I'm Rene: I am a stay at home mom with two teenagers;I have a 18 year old son and a 16 year old daughter who is battling cyclic Cushing's disease. I've been happily married for 21 years and live in California ...
Miss Diagnosis - http://missdiagnosis-rene.blogspot.com/

 

Toxic Treadmill: Is Obesity a Disease? Current Research, Facts ...
By Fayette Front Page.com
Certain known illnesses can also cause weight gain or obesity, including hypothyroidism, Cushing's syndrome, and polycystic ovary syndrome. Opponents argue that obesity is not a disease because it is the result of a person's environment ...
Toxic Treadmill - http://toxictreadmill.blogspot.com/

 

Symptoms Of Cushing's Disease In A Child | LIVESTRONG.COM
Symptoms Of Cushing's Disease In A Child. Cushings disease is a condition of excessive production of a hormone called cortisol. Cortisol is produced in the ...

Cushing’s Blog Alerts, November 18, 2009

 

Another Day in the Life of a Train Wreck: I had to change my blog ...
By Gracie

I put this blog up to help others with Cushing's and for family and friends to be able to catch up with what's going on. I had an insensitive jerk post on my last blog post that I still look enormous and I should eat more cake, blah, ...

Another Day in the Life of a Train Wreck - http://adayinthelifeofatrainwreck.blogspot.com/

Cushing's Blog Alerts, November 8, 2009

Legend of Bagger Vance, the » information on cushings disease ?
By marcmendez1978
i have been reading a lot about cushings disease and i was just wondering if you have to be obese to have it , i am 5 foot 10 and weigh 170 pounds , i am a bit over weight but not classed as obese . i have most of the other symptoms( ...
Legend of Bagger Vance, the - http://legendofbaggervancethe.gpscomparisons.org/

 

Cushing's & Cancer: A cry for health care reform
By MaryO
Because I had very little support for my symptoms, diagnosis and surgery, I decided to try to make things a little better for other patients and started a support site called Cushing's Help and Support in 2000. ...
Cushing's & Cancer - http://cushingshelp.blogspot.com/

 

Cushing's support group in Sydney « An adventure in Cushing's and ...
By jennnigan
If you're in Sydney, have been affected by Cushing's, and would like to come along, you're more than welcome to do so! Please send me an email at jennigan[at]gmail[dot]com if you'd like the details. ...
An adventure in Cushing's and stroke - http://blog.slight-hiccup.com/

Tonight 9:00OM ET, Interview with Laura who is testing for Cushing's. Listen live at http://ow.ly/xlqe

Next Cushing's Help Interview with Laura, October 29, 2009

October 29 at 9:00PM eastern, Interview with Laura (LauraNG)

This interview will take place at 9:00 PM eastern - please note later time!

Laura has been struggling since 2007 with various odd things happening to her body.

In March of 2009 she was diagnosed with Hashimoto's Disease and Hypothyroid.

Her bio contains a long list of symptoms she has and she has been misdiagnosed with Obesity, Diabetes, Kidney stones, Depression, MS, Manic/Depressive, TIA, Anxiety - stress, Not exercising enough, Not eating properly, Abusive relationship (due to bruising).

In responding to the email confirming this interview Laura wrote:

"When I started reading the bio's of people like myself, I started to cry tears of relief that what I may have, is actually ONE real thing. I cannot tell you how happy I was to find your website and I think it is wonderful that so many people who truly understand how frustrating it is to think we are alone, are willing to put themselves out there as beacons of hope for the rest of us. I felt so strongly, that I wanted to add my bio and offer myself for interview. If I can help one person feel a little calmer while they go through this process, I am more than willing. I don't know if I have Cushing's but if I do, it is important to me to reach out to others because the attacks coming from the physical and mental side of this illness, deserve to be exposed and recognized. Even though I am feeling a bit humiliated, reclusive and embarassed because of what it is doing to me."

Read Laura's entire bio at http://www.cushie.info/index.php?option=com_content&view=article&id=413:laura-undiagnosed-bio&catid=32:bios&Itemid=68

You can listen live at http://www.blogtalkradio.com/CushingsHelp The archives are usually up about 30 minutes after the end of the show and in our podcast area of iTunes by Friday.

The Call-In number for questions or comments is (646) 200-0162.

8 new Cushing's bios added. dx include 1 pituitary, 1 diagnosed not sure of type, 6 undiagnosed at http://ow.ly/vt3P or http://ow.ly/vt3Q

8 new Cushing's bios added. dx include 1 pituitary, 1 diagnosed not sure of type, 6 undiagnosed at http://ow.ly/vt0D or http://ow.ly/vt1n

Münchausen By Media - what do you think? http://ow.ly/vgEn

Cushing's locations page updated, 9 new people added from England, USA. http://ow.ly/vgop

<~~ not observant. Your blog was already there! @CatONineTales

Another Cushing's Patient has Died :(

I did not know Bonny personally but she was an Australian member of the Cushing's Help message boards who rarely posted. 

She was only 45 at the time of her death October 12, 2009.  I've known far too many Cushies who have died far too young from this disease.

 

Bonnie's Avatar

Bonny wrote July 1, 2009

I was sick with ALL the symptoms (about 30-40) for 5 years. Finally got correctly diagonosed and had my left Adrenal Gland and its tumour removed in June 2007. The recovery was long and hellish. The worst symptom after the operation was 3 months of constant itching literally from my scalp to my heels and every inch of skin in between. I also had pain in every single joint of my body, along with all the pre op symptoms that took a long long time to improve.

Now two and a half years on, I have a second tumour... on the same side! No idea how that can be seeing as the gland is gone. My Endo is overseas so until he comes back I don't know much, but they are running more tests and I am waiting for a surgery date to go through it all over again!

All the symptoms are horrible, but last time I particularly hated the fractures (still have a few of those),as they made life so difficutlt and painful, but also relly hated losing half my hair, and the weight gain and moon face. Feeling awful is terrible, but when you add the things that make you look horrible too, its pretty hard to take.

As a single parent, (divorced), life is very hard with Cushings as you don't have anyone else to do the things for you that you cant do yourself, or help you with your own personal stuff.

Before and after Cushing's pictures.

Rest in peace, Bonny!

 

Beth said it best on Facebook

(I) lost a very strong, courageous friend to the very disease she suffers from.. your pain is gone now, Bonny.. Rest well and thank you for touching my life. ♥