Cushing’s Awareness Patient Day

Saturday, February 1st, 2014

San Francisco, California

Hosted by Kate Tully, R.N. and Katherine Waidner, R.N.
Cushing’s Patient Advocates – Corcept Therapeutics

Agenda and details to follow

The day will focus on endogenous Cushing’s, a condition caused by high cortisol in your body.

The day will not cover exogenous Cushing’s caused by steroids taken for various health conditions including asthma, arthritis or lupus.

Magic Foundation Cushing's Conference, 2013

Dates:

Friday, April 19, 2013 - Registration and exhibits-4 PM to 9 PM

Saturday, April 20, 2013 - Educational segments

Sunday, April 21, 2013 – Educational Segments

Monday, April 22, 2013 – Departure or visiting sites of Las Vegas

 

Registration: $155 for members $190 for non-members (includes 1 yr membership)

Registration fee includes: Thursday exhibits and refreshments, Friday continental breakfast, and lunch and Saturday continental breakfast and lunch. An optional dinner will be held on Friday night for $25.00 per person.

For additional attendees in your family there will be no registration fee but a $75 charge for inclusion of the segments and meals. (optional dinner on Friday night not included in the $75 fee)

 

Accommodations:

Tuscany Suites & Casino (Just off the Las Vegas Strip)

255 East Flamingo Rd

Las Vegas, NV

Guest room costs: 

Friday and Saturday $105 per guestroom, single or double occupancy ($117.60 w/tax)

Sunday thru Thursday $65 per guestroom, single or double occupancy ($72.80 w/tax)

Reservations made after March 20, 2013 at noon will be charged the prevailing room rate if accommodations are available. To book your room you must call Tuscany Room Reservations, 877-887-2261 and ask for MAGIC Foundation group rates. You will be required to provide a major credit card for the first night’s room and tax deposit, which will be charged in order to guarantee accommodations.

Metro Area Cushie Lunch (or Dinner)

A Cushie from Maryland is coming to the Metro DC area for lunch on Wednesday, October 24 in Falls Church.  If anyone else is interested, she's willing to come for dinner instead.

If you're interested, please let me know.  :)

Johns Hopkins Pituitary Patient Day, More Info

Johns Hopkins Pituitary Patient Day

Join us on Saturday, September 29, 2012, for the 4th Annual Patient Education Day at the Johns Hopkins Pituitary Center.

When: Saturday, September 29, 2012
Time: 9:30 a.m.
Location:
Johns Hopkins Mt. Washington Conference Center
5801 Smith Avenue
Baltimore, MD 21209
map and directions

Patient Education Day Agenda:
9:30 - 10:00 AM	REGISTRATION AND BREAKFAST
10:00 - 10:20 AM	What is the pituitary, and what can go wrong	Gary Wand, MD
10:25 - 10:45 AM	Vision problems in pituitary patients	Prem Subramanian, MD, PhD
10:50 - 11:10 AM	Pituitary Disease: a patient’s prospective	Barbara Craven, PhD
11:15 - 11:35 AM	Surgery for Pituitary tumors: what to expect	Alfredo Quinones-Hinojosa, MD and Gary Gallia, MD, PhD
11:40 - 12:00 PM	Nose problems before and after pituitary surgery	Masaru Ishii, MD, PhD
12:05 - 12:25 PM	When is radiotherapy needed for pituitary tumors	Kirsten Redmond, MD
12:30 - 1:25 PM	Lunch
1:30 - 3:00 PM	Breakout sessions 1) Medical therapy (Wand/Salvatori) 2) Surgical therapy (Gallia) 3) Radiation therapy (Redmond/Lim) 4) Vision issues (Subramanian) 5) Nose issues (Ishii)

*This schedule is subject to change

Please R.S.V.P. by September 14, 2012, by contacting Colleen Hickson at  (410) 614-5887 orckristo1@jhmi.edu.

Reservations will be taken on a first-come, first-serve basis.

8th Annual Convention for Adults with Pituitary Disorders

The confirmed convention dates for the 8th Annual Convention for Adults with Pituitary Disorders are Friday, April 19th, 2013-Sunday, April 21st, 2013 in Las Vegas, NV. 

 

So far, they are looking at two hotels, either the SUNCOAST or TUSCANY.

 

More info as it becomes available.

Fourth Annual Johns Hopkins Pituitary Patient Education Day

Saturday, September 29, 2012

9:30AM Registration

10:00AM Presentations

12:30 PM Lunch

1:30-3:00PM Breakout sessions with physicians

Johns Hopkins Mt Washington Conference Center

5801 Smith Avenue

Baltimore, MD 21209

 

Please RSVP by September 14, 2012

Colleen Hickson at ckristo1@jhmi.edu or 410.614.5887

Day Ten, Cushing's Awareness Challenge

Blue and Yellow - we have those colors on ribbons, websites, tshirts, Cushing's Awareness Challenge logos and even cars.

This is the yellow PT cruiser I had rented for the Columbus, OH meeting in 2007. It was when we all met at Hoggy's for dinner although some of us travellers stayed at this hotel.

I'm the one in yellow and blue.

 

 

Later in 2007, I bought my own truly Cushie Car.  I even managed to get a butterfly on the tags.

So, where did all this blue and yellow come from, anyway?  The answer is so easy and without any thought that it will amaze you!

In July of 2000, I was talking with my dear friend Alice, who runs a wonderful menopause site, Power Surge, wondering why there weren't many support groups online (OR off!) for Cushing's and I wondered if I could start one myself and we decided that I could. This website (http://www.cushings-help.com) first went "live" July 21, 2000.  It was a one-page bit of information about Cushing's.  Nothing fancy.

I didn't know much about HTML (yet!) but I knew a little from what Alice had taught me and I used on my music studio site.  I didn't want to put as much work <COUGH!> into the Cushing's site as I had on the music studio site so I used a WYSIWYG web editor called Microsoft FrontPage.

One of their standard templates was - you guessed it! - blue and yellow.

TaDa!  Instant Cushie color scheme forever.  Turns out that the HTML that this software churned out was really awful and had to be entirely redone as the site grew.  But the colors stuck.

Boston, Pituitary Day, 2012

On behalf of the Brain Science Foundation, the Department of Neurosurgery at Brigham and Women’s Hospital and the BWH Pituitary/Neuroendocrine Center, you are invited to attend Pituitary Day. This program will take place on Saturday, March 24, 2012, from 7:45 AM to 5:00 PM at the Bornstein Amphitheater at Brigham and Women’s Hospital in Boston.

 

 Pituitary Day is a conference that unites patients, caregivers, family and friends with leading clinicians, researchers, nurses and other experts to discuss the latest in pituitary diagnosis and treatment. By way of a series of presentations and panel discussions, we will discuss basic and new information related to pituitary disorders, including physical and psychological aspects, and other important patient issues.

 

Our expectation is for this to be a truly remarkable and empowering experience and we hope you will consider joining us this year. For more information, please contact Sarah Donnelly at 781-239-2903 or sarah@brainsciencefoundation.org.

 

When

Saturday March 24, 2012 from 7:45 AM to 5:00 PM EDT

Where

Brigham & Women's Hospital, Bornstein Amphitheater 

45 Francis Street

Boston, MA 02115 

Click to Register